Skip to content
Edwards Syndrome Association

  • Home
  • About ESAExpand
    • Organizational Overview
    • Leadership & Governance
    • Financial Transparency
  • ProgramsExpand
    • Hospital Display Campaign
    • NICU Family Support Program
    • Milestone Recognition Program
    • Bereavement Support Program
  • ResourcesExpand
    • Understanding Trisomy 18Expand
      • What is Trisomy 18?
      • Diagnosis
      • Medical SpecialtiesExpand
        • Cardiovascular Conditions
        • Neurological Conditions
        • ENT – Ears, Nose and Throat
    • Medical & Clinical ArticlesExpand
      • Cortical Visual Impairment (CVI)
      • Beyond Diagnosis Resource Guide – CP
      • Wilms’ Tumor
    • Family GuidesExpand
      • Parent Guide
      • Prenatal Questions
      • FAQ
      • Estate and Family Planning
    • Therapy & DevelopmentExpand
      • Trisomy 18 Therapy Hub
      • Physical Therapy Guide
      • Occupational Therapy
      • Speech TherapyExpand
        • AAC Devices
      • Vision Therapy
      • Specialized Therapy Services
      • Therapy Toys
      • Trisomy 18 Educational Books
    • PublicationsExpand
      • ESA Brochures
      • Educational Media
  • Impact
  • Get InvolvedExpand
    • Volunteer
    • Events OverviewExpand
      • 2026 Race Sponsors
      • Breaking Barriers: 3.18K Run for Trisomy 18 Awareness
      • Breaking Barriers: 3.18k Sponsorship
    • Community ParticipationExpand
      • Thriving Thursday
      • Share Your Family’s Story
      • Precious Angels Memorial
      • Honor Your Precious Angel
  • Donate
  • Contact Us
Edwards Syndrome Association

Mia's Story

Mia12Full
Mia1Full
Mia2Full
Mia3Full
Mia4Full
Mia5Full
Mia6Full
Mia7Full
Mia is a child diagnosed with Edwards Syndrome/Trisomy 18
Mia9Full
Mia10Full
Mia11Full
GO BACK

For Families

The Edwards Syndrome Association (ESA)
National 501(c)(3) Nonprofit Organization
EIN: 92-2788059
Founded: 2023

📍 6615 Grand Avenue #304
Gurnee, IL 60031

📧 admin@edwardssyndrome.org

✔️ IRS Recognized 501(c)(3)
✔️ In Good Standing
✔️ Serving Families Nationwide

For Families

Our Community

What is Trisomy 18?

Medical Resources

Therapy Information

Submit a Story

 

 


Join our newsletter

Stay informed about advocacy initiatives, educational resources, and community impact.

Facebook Instagram Tiktok Youtube X-twitter Linkedin

© 2026  THE EDWARDS’ SYNDROME ASSOCIATION NFP | Based in Illinois | PRIVACY POLICY & DISCLAIMERS. 

  • Home
  • About ESA
    • Organizational Overview
    • Leadership & Governance
    • Financial Transparency
  • Programs
    • Hospital Display Campaign
    • NICU Family Support Program
    • Milestone Recognition Program
    • Bereavement Support Program
  • Resources
    • Understanding Trisomy 18
      • What is Trisomy 18?
      • Diagnosis
      • Medical Specialties
        • Cardiovascular Conditions
        • Neurological Conditions
        • ENT – Ears, Nose and Throat
    • Medical & Clinical Articles
      • Cortical Visual Impairment (CVI)
      • Beyond Diagnosis Resource Guide – CP
      • Wilms’ Tumor
    • Family Guides
      • Parent Guide
      • Prenatal Questions
      • FAQ
      • Estate and Family Planning
    • Therapy & Development
      • Trisomy 18 Therapy Hub
      • Physical Therapy Guide
      • Occupational Therapy
      • Speech Therapy
        • AAC Devices
      • Vision Therapy
      • Specialized Therapy Services
      • Therapy Toys
      • Trisomy 18 Educational Books
    • Publications
      • ESA Brochures
      • Educational Media
  • Impact
  • Get Involved
    • Volunteer
    • Events Overview
      • 2026 Race Sponsors
      • Breaking Barriers: 3.18K Run for Trisomy 18 Awareness
      • Breaking Barriers: 3.18k Sponsorship
    • Community Participation
      • Thriving Thursday
      • Share Your Family’s Story
      • Precious Angels Memorial
      • Honor Your Precious Angel
  • Donate
  • Contact Us
Verified by MonsterInsights