The Edwards Syndrome Association
Support and Resources for Families
Join us for our 2nd Annual Breaking Barriers 3.18k Trisomy Awareness Race! Whether running, walking, or rolling, this event is about raising awareness and showing support for those impacted by Trisomy 18. Let’s unite as a community, break barriers together, and make a difference for these incredible children and their families. We can’t wait to see you there!
Make a Difference with Edwards Syndrome Association
We are a community of parents, caregivers, and individuals affected by Edwards Syndrome who are passionate about advocating for awareness, supporting families, and providing resources. Join us in making a difference by getting involved in our mission through volunteer opportunities, advocacy efforts, and donations. Together, we can create a brighter future for individuals with Edwards Syndrome.
Advocate for Awareness
Help us raise awareness about Edwards Syndrome and its impact on families and individuals.
Support Families
Join us in providing resources and support to families affected by Edwards Syndrome.
What is Trisomy 18?
Every life is precious, including those with Trisomy 18, or Edwards Syndrome. The extra chromosome may present physical and intellectual challenges, but it never diminishes the value of the individual. With appropriate care, those with Trisomy 18 can lead fulfilling lives. Seeking timely diagnosis and care ensures the best quality of life possible. Let’s celebrate the uniqueness of every person, and learn more about Trisomy 18 here…
Check out these Amazing Awesome Helpful Packages!
During tough times, our NICU Package program brings comfort and inspiration to families with newborns in Neonatal Intensive Care Units (NICUs). Join our program and receive our NICU Care Package to spread kindness and hope. Submit a request via the button for your special package!
Our “Cards of Hope” program brings joy to kids with Edwards Syndrome “Trisomy 18” who are hospitalized. We believe love and positivity can work wonders, especially for these special children. We offer a care package to brighten your child’s day!
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Join Our Community and Make a Difference
"Inspiration Station"
Thriving Thursday is a beacon of hope and inspiration for families affected by Trisomy 18. Every week, we celebrate the remarkable lives of these courageous children, who defy the odds and live with incredible resilience and joy. Their stories remind us all that with love, determination, and support, every child can shine brightly and make a profound impact on the world.
We aim to show the medical community how well our Trisomy 18 warriors can thrive with proper therapy, intervention, and support. By celebrating their inchstones and milestones, we inspire each other and medical professionals alike. Together, we can change perceptions and prove that these incredible children are not only compatible with life but are thriving and making a difference!
Angel Story Submission Program
If you are looking for a way to share the story of your precious Angel’s life, you have come to the right place! We invite you to submit your Angel today using the form below. By featuring your Angel, we hope to spread awareness about Edwards’ Syndrome and change the narrative surrounding this diagnosis. Join us in celebrating and honoring the lives of these incredible children, and help us make a difference by sharing their stories with the world.
