Welcome to the Edwards Syndrome Association! We are here to bring awareness, help advocate, and support Edwards Syndrome/Trisomy 18 Syndrome families. We have a support group on Facebook for Parents/Caregivers that you can join to discuss your concerns and connect with others in the community! 

The Edwards Syndrome Association is proud to announce that it is taking steps to shatter barriers and raise awareness for individuals with Edwards Syndrome/Trisomy 18. This year, for the first time, we will be hosting a virtual event to bring people together and raise funding for resources. This event is happening from March 18th to March 24th, 2024. We’re excited to mark March 18th as Trisomy 18 Awareness Day and take time to celebrate the amazing warriors who have three copies of chromosome 18. We believe that every individual deserves to have the support and resources they need, which is why this event is so important. We encourage everyone to partake in our 3.18k challenge, which is a fun way to show your support for these wonderful individuals throughout the week. Let’s Break Barriers together and make a difference!

Breaking Barriers

Sponsors for 3.18k

Gold

Take the first step towards enhancing your child’s life and seek the help of a skilled pediatric chiropractor now. Check the pxdocs network for a Chiropractor near you. 

https://pxdocs.com

JD Property Solutions is a real estate investment firm that specializes in flipping distressed properties into new beautiful homes throughout the U.S.  In addition, the goal at JD Property Solutions is to educate individuals on the advantages of real estate, help navigate passive real estate investing, and provide busy professionals with passive investment opportunities for long-term wealth.

Blanford’s Professional Tree Care and Landscape Services to Residential, Commercial and Municipal clients in the MD, DE & PA regions

Silver

Team Select’s mission is to change lives for the better. We advocate for families in need, treat our patients like the heroes they are, and empower our team members to make the world a better place. With more than 15 years of providing quality and compassionate in-home care, Team Select is proud to be a trusted partner in enhancing the well-being of our patients and their loved ones.

Therapeutic Links is an Occupational Therapist owned private practice since 2002.

 As an amazing bonus, they have expertise in working with Trisomy 18 kiddos!! 

http://www.therapeuticlinks.com/

Therapeutic Links staff are extremely knowledgeable therapists who are dedicated to helping children and their families improve everyday functioning. They utilize meaningful occupations, evidence-based practice, as well as engaged relationships as a vehicle towards progress and success. They empower all children to become independent in all facets of development.  They pride themselves in working collaboratively with your whole team of caregivers, teachers and professionals.

Bronze

Eleni James Co is a 3.18k Silver Sponsor

Eleni James Co. creates custom silicone bead keychains and lanyards that are stylish, unique, and durable. We use only the finest materials to ensure top-quality crafts. Find us on social media for our latest styles and designs. Stand out from the crowd with our one-of-a-kind accessories.

Born Abel highlights and normalizes the humanity, worth, and abilities of babies and children born with complex health conditions. We provide mom-to-mom support – connecting families with advocacy resources, helping supply baby and pregnancy necessities, and showcasing these amazingly abeled children in colorful, inclusive, kid-friendly books.

River Point is the standard for ultramodern office space in Chicago, Illinois. The 52-story, 1,082,000-square-foot world-class office tower is located in Chicago’s downtown West Loop on the edge of the Chicago River at the corner of Lake and Canal Streets. The Engineering team works daily to ensure River Point operates in a vibrant, efficient manner.

Edwards Syndrome 3.18k Bronze

Your Insurance Ninjas for Tennessee and Kentucky!

http://cordellinsuranceagency.com/

Myers Family - Edwards Syndrome Trisomy 18 3.18k
Edwards Syndrome Association

What is Trisomy 18?

Trisomy 18, a genetic condition known as Edwards Syndrome, occurs when a person has three copies of chromosome 18 instead of the usual two copies. This extra genetic material can cause various physical and intellectual challenges. While the symptoms and severity vary from individual to individual, common features of trisomy 18 include a small head, low birth weight, clenched fists with overlapping fingers, and various structural abnormalities of the heart, kidneys, and other organs. Children with trisomy 18 have a chance to live longer enriched lives with the appropriate medical care and support. It is important to seek timely and accurate diagnosis and care of trisomy 18 to help maximize the quality of life for individuals and their families affected by this condition. There are several types of Trisomy 18 which are explained further here…

Thriving Thursday

Eleanor, Trisomy 18 Thriving Child
It Is THRIVING THURSDAY!!! 
 
Meet Eleanor Jane!!
She is 3 years old and has Mosaic Edwards’ Syndrome.
In the words of her family, “Eleanor Jane ever since birth has been determined to do her own thing. She doesn’t know the word can’t and tries everything! She does three therapies a week and she loves them. She’s always so happy and ready for the day. She rules the house. We love traveling and exploring with her. She can do it all with us. She just went to Mexico and had a blast! Despite a diagnosis – She is compatible with living! She has shown that she is compatible with everything!”
 
Did you also know that sweet Eleanor is a model? You can find her photo down below on our website!! 🩵 She is the definition of thriving!!!
 
Prior Submissions…
I would love to feature your warrior on here!
Just use the submit here button belo

NICU GIFTS

We are thrilled to share with you an incredible program that has been making a huge impact on the lives of newborns and their families! We understand the difficulties and stress that come with having a baby in the Neonatal Intensive Care Unit (NICU). But with our NICU Gifts program, we strive to provide comfort and joy to families during these tough times. We take the time to carefully select beautiful gifts that are sent to newborns as they begin their road to recovery. It is our way of showing these families that they are not alone in their journey. So, if you or someone you know has a baby in the NICU, we encourage you to sign up for our NICU Gifts program and receive the NICU Care Package. Let us spread kindness and hope during this challenging time by clicking the “NICU Gift” button on our website.

Outreach Programs

CARDS OF HOPE

Our “Cards of Hope” program is here to make a positive impact on children with Trisomy 18/Edwards Syndrome who are currently inpatients within the hospital. We believe that love and positivity can do wonders, especially for these special children who are going through a tough time. As part of our program, we provide a small care package for them, which includes thoughtful items that can brighten their day. Moreover, we provide an easy-to-use form for sending personalized and heartwarming cards, so that you can join us in this effort to spread love and positivity. Simply click the “Cards of Hope” button and access the form to send your message of support to the children who need it the most. Your small gesture can make a huge difference in their lives!

Precious Angels

Angels, Presley June, Trisomy 18 Child
Presley June
In the words of her family, “Our Presley June fought through open heart surgery, tracheostomy, and a g-button procedure plus a cleft lip and palette and more. She spent her first 83 days in the hospital followed by 8 amazing months at her home. Presley had so many amazing doctors, nurses, and therapists that were on her side cheering her on. PJ worked hard, learned new things, loved her family, and thrived with us for 11 amazing months. She loved Christmas, her family, going on walks, rocking in the chair on the porch, her glow worm, and most bath times. Her smile filled our hearts with so much joy. She was defying the odds and loving life when we lost her suddenly due to illness. We can’t wait to see her again.”
 
To have your Angel featured submit the form: 

Explore Resources

Do you have a resource that can help our community?

We are alway seeking out useful resources to support and educate ourselves and our community.  If you have a resource you believe could help The Edwards’ Syndrome Association (ESA) Community please let us know about it. 

Edwards Syndrome Association Empowering Parents

Compatible With......

Eleanor Jane has Trisomy 18/Edwards Syndrome and is modeling for a Fashion Kids Magazine

Eleanor, Trisomy 18 Child, Magazine Cover