The Edwards Syndrome Association
A community of parents and caregivers – Support and Resources
Join us for our 2nd Annual Breaking Barriers 3.18k Trisomy Awareness Race! Whether running, walking, or rolling, this event is about raising awareness and showing support for those impacted by Trisomy 18. Let’s unite as a community, break barriers together, and make a difference for these incredible children and their families. We can’t wait to see you there!
What is Trisomy 18?
Every life is precious, including those with Trisomy 18, or Edwards Syndrome. The extra chromosome may present physical and intellectual challenges, but it never diminishes the value of the individual. With appropriate care, those with Trisomy 18 can lead fulfilling lives. Seeking timely diagnosis and care ensures the best quality of life possible. Let’s celebrate the uniqueness of every person, and learn more about Trisomy 18 here…
Check out our Amazing Programs
NICU Package
During tough times, our NICU Package program brings comfort and inspiration to families with newborns in Neonatal Intensive Care Units (NICUs). Join our program and receive our NICU Care Package to spread kindness and hope. Submit a request via the button for your special package!
Cards of Hope
Our "Cards of Hope" program brings joy to kids with Edwards Syndrome "Trisomy 18" who are hospitalized. We believe love and positivity can work wonders, especially for these special children. We offer a care package to brighten your child's day!
1st Birthday Gifts
The ESA wanted to celebrate Edwards Syndrome warriors on their first birthday. This is the age that so many in the medical field say those with an extra 18th chromosome will not see. This makes this birthday so much more special for these kiddos.
Discover
Join Our Community and Make a Difference
Become a member of the Edwards Syndrome Association and join our community. By joining our community, you can connect with other families affected by Edwards Syndrome and learn about their experiences. Share your stories, feelings, and advice with our supportive community and access useful resources and information. Together, we can positively impact the lives of individuals with Edwards Syndrome.
Check out ESA Merchandise in our store!
Check out our thriving Community!
Thriving Thursday is a beacon of hope and inspiration for families touched by Trisomy 18. We honor the extraordinary lives of these resilient children, who courageously overcome challenges and bring joy to all who know them. Their stories remind us that with love, strength, and support, every child has the potential to shine and make a lasting impact on the world.
Beautiful Angel Stories
We invite you to share your Angel’s journey with us. By featuring their story, we aim to spread awareness, inspire compassion, and transform how the world understands Edwards’ Syndrome. Together, we can change the narrative surrounding this diagnosis, offering hope and understanding to families everywhere. Your Angel’s life is a testament to strength and beauty, and by sharing their story, you are helping to create a legacy of love and awareness that touches hearts around the globe. Join us in celebrating their light and making a difference, one story at a time.
