About Us
Who We Are
The Edwards Syndrome Association (ESA) was founded by a group of friends united by one mission—creating positive change for children diagnosed with Edwards’ Syndrome (Trisomy 18) and their families. What began as individual dreams of advocacy grew into a shared vision that became a reality through collaboration and determination.
At ESA, we believe in “No Limitations.” Every child holds limitless potential and worth. Our mission is to provide boundless advocacy, compassionate support, and access to specialized medical care, therapies, resources, and education—empowering children to thrive in meaningful ways.
We are committed to changing the statistic that gives families little hope, with many told their child has less than a 10% chance of living past their first birthday. Through sustained support, we aim to improve outcomes and walk alongside families every step of the journey.
We help parents find answers to the questions that matter most:
How can we access fair and equitable medical care?
What therapies and equipment will help my child most?
What educational and developmental resources are available?
By connecting these vital pieces into one accessible network, ESA works to shine a light on the abilities, resilience, and joy of every Edwards’ Syndrome warrior. We advocate for a medical community that recognizes their value and ensures they are given the same opportunities as any child.
Jeanna Polacek, from Illinois, co-founded the Edwards’ Syndrome Association after her daughter Mia’s diagnosis. With a background in Criminal Justice and Paralegal studies, she previously worked in immigration law. Living near Chicago, she enjoys exploring new places, camping, and hockey, and is dedicated to bringing hope to families affected by Edwards’ Syndrome.
Kelly Peterson, a Maryland native, advocates for Edwards’ Syndrome inspired by her daughter Emma, who has Mosaic Edwards’ Syndrome. With a background in disability, education, and the medical field, she uses her expertise to support other families. Kelly holds a degree in Early Childhood Education along with multiple medical certifications.
Robert Polacek, a Senior Project Accountant with a BA in Accounting from the University of St. Thomas, was inspired by his first daughter’s Edwards’ Syndrome diagnosis to help other families navigate the healthcare system. Alongside his wife, Jeanna, he works to improve awareness and advocate for the well-being of children with the condition. Robert enjoys family time, sports, and golf while striving to positively change society’s view of Edwards’ Syndrome.
Brandon Huxhold, Client Executive at Insight and ESA’s Social Media Manager, uses his platform to raise awareness about Edwards’ Syndrome, inspired by his daughter Fiona. A St. Mary’s University of Minnesota graduate, he shares resources, support, and engaging content while enjoying golf and creating TikTok videos.
Crystal Simpson, Advocacy Manager for the Edwards’ Syndrome Association, is inspired by her son Gunnar, who has Edwards’ Syndrome. With a background in caregiving and experience as a CNA, she provides sensory coaching for parents and works to bridge the resource gap beyond the newborn stage. Based in Kentucky, Crystal enjoys outdoor adventures with her family.
Kids Behind the ESA
