The ESA may collect information in various ways by a user on this site. The ESA also may collect information from forms, questionnaires, or contact buttons that you voluntarily submit. The ESA also may collect information from correspondence you may have via email, letters, or other communication means on social media. Two types of information may be collected: personally identifiable (information that identifies you or that can be used to contact you) and non-personally identifiable (gender, diagnosis, age, etc.). The ESA will utilize the information that you provide to assist with services or to build resources. The ESA may also share information you provide with third parties that share similar missions that The ESA partners with. The ESA may also share personal information with another in the Edwards’ Syndrome community if you agree to this via a form or questionnaire.
If you submit a media file such as a picture or a video you are acknowledging that this media will be publicly accessible on the website, social media, promotional materials, or other platforms.
Cookies & Analytics
Cookies are bits of information that contain a specific identifier for a user and website. These cookies allow websites to gear the page’s content to a particular user based on data that was retrieved from a prior website visit. While the Edwards’ Syndrome Association does not collect data via cookies, some first and third-party add-ins that are present on The ESA platforms do collect cookies to provide website access and usage analytics for search engine purposes. You are agreeing to the use of these cookies by visiting Edwards’ Syndrome Association platforms.
The ESA is not responsible for the privacy practices of third-party sites that are linked through The ESA website or shared on social media or other platforms. If users access a link from The ESA site or another platform you should review the privacy policies of the website.
If you choose to opt-in for The ESA updates, your information will be kept in a secure database in order to alert you of news and happenings. If you wish to be removed from the alerts, or any other communications or programming, reach out to [email protected] and title the correspondence “Opt-out”.