Trisomy 18 Educational Books

Empowering Families • Educating Professionals • Inspiring Hope

 At the Edwards Syndrome Association, we believe that knowledge fuels advocacy and compassionate care. Explore our curated list for families, therapists, educators, and medical professionals supporting children with Trisomy 18.

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Mia, Full Trisomy 18 child, reading with her mommy and her sister Madison
Mia reading with her mommy and sister, Madision

Therapy & Development

Motor, Communication & Sensory

Recommended for: Parents, Therapists, and Early Intervention Specialists Focus: Motor skills, communication, sensory integration, and reflex development.

  • Teaching Motor Skills to Children with Cerebral Palsy and Other Movement Disorders – Sieglinde Martin, M.S., PT

  • Fine Motor Skills for Children with Down Syndrome – MaryAnne Bruni, BSCOT (Reg)

  • Gross Motor Skills for Children with Down Syndrome – Patricia C. Winders, PT

  • Early Communication Skills for Children with Down Syndrome – Libby Kumin, Ph.D., CCC-SLP

  • Guide and Grow – Baby’s 1st Year: A Monthly Guide to Development and Milestones – Sharon Drewlo, OTR/L, CIMI

  • Speech Therapy for Toddlers: 137 Games for Early Communication – Kids SLT Publications

  • Integrating Primitive Reflexes Through Play and Exercise – Kokeb Girma McDonald, OTR/L

  • Play to Progress: Lead Your Child to Success Through Sensory Play – Allie Ticktin, OTD, OTR/L

  • Building Bridges Through Sensory Integration – Ellen Yack, Paula Aquilla & Shirley Sutton
  • The Out-of-Sync Child – Carol Kranowitz, M.A. (A sensory integration classic)

Educational Advocacy & Inclusion

IEPs, Rights & School Partnerships

Recommended for: Parents, Teachers, and Special Education Advocates Focus: IEPs, advocacy, and rights in education.

  • Wrightslaw: All About IEPs – Pam & Pete Wright

  • Wrightslaw: From Emotions to Advocacy – Pam & Pete Wright

  • Wrightslaw: Special Education Law – Pam & Pete Wright 

  • The Complete IEP Guide – Lawrence M. Siegel

  • A Parent’s Guide to Special Education – NICHCY & PACER Center

  • Inclusion: The Dynamic of School Change – Marsha Forest & Jack Pearpoint

Brain & Development

Neuroplasticity & Early Intervention

Recommended for: Parents, Therapists, and Neurodevelopmental Professionals Focus: Brain plasticity, reflex integration, and early intervention.

  • The Symphony of Reflexes – Bonnie L. Brandes, M.Ed

  • Kids Beyond Limits – Anat Baniel

  • Fit Baby, Smart Baby, Your Baby – Glenn Doman, Douglas Doman, Bruce Hagy

  • How Smart Is Your Baby? – Glenn Doman, Janet Doman

  • What to Do About Your Brain-Injured Child – Glenn Doman

  • Active Baby, Healthy Brain – Margaret Sasse

  • NeuroTribes: The Legacy of Autism and the Future of Neurodiversity – Steve Silberman

  • The Brain That Changes Itself – Norman Doidge, M.D.

  • The Whole-Brain Child – Daniel J. Siegel, M.D. & Tina Payne Bryson, Ph.D.

Nutrition & Wellness

Feeding, Growth & Immunity

Recommended for: Parents and Caregivers Focus: Nutritional strategies to support immunity, growth, and brain health.

  • Cure Your Child with Food – Kelly Dorfman, MS, LND

  • The Smart Baby Cookbook – Dr. Natalia Vollrath-Hale & Lauren Cheney

  • The Big Book of Organic Baby Food – Stephanie Middleberg, MS, RD, CDN

  • Super Nutrition for Babies – Katherine Erlich, M.D. & Kelly Genzlinger, C.N.C.

  • The Nourishing Traditions Book of Baby & Child Care – Sally Fallon Morell

  • Feeding Therapy: Strategies for Early Intervention – Melanie Potock, M.A., CCC-SLP

Trisomy 18 Education & Family Stories

Real Stories, Guidance & Hope

Recommended for: Families, Advocates, and Medical Professionals Focus: Personal stories, family guidance, and hope-centered education.Add Your Heading Text Here

  • Although You’re Little – Brooke Renton

  • Julia’s Like Me: Meet a Girl with Trisomy 18 – Tamara Dever, Erin Stark

  • Bella’s Gift: How One Little Girl Transformed Our Family and Inspired a Nation – Rick Santorum, Karen Santorum, Elizabeth Santorum

  • When Wishes Change – Tricia Roos

  • I Am Not a Syndrome – My Name is Simon – Sheryl Crosier

  • Our Baby Will Be Different – Beverly Jackson

  • From Diagnosis to Delivery: What to Expect When the Unexpected Happens During Your Pregnancy – Beverly Jackson

  • Hope Beyond Diagnosis: Stories from Trisomy Families – (ESA Publication suggestion)

  • Breaking Barriers: A Parent’s Journey Through Trisomy 18 – (ESA Author Series)

  • Living with Purpose: Lessons from Our Trisomy Angels – (Future ESA Community Collection)

Have a book to recommend?

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Emma, Mosaic Trisomy 18, reading a book