
Mama Bear Care empowers women who have received a prenatal diagnosis to embrace their Mama Bear role, equipping them to advocate for their special babies with fierce love and tender care.

Extra To Love aims to empower the Trisomy 13 and Trisomy 18 communities through connection, financial support and education.

Our organization provides modest financial support to cover medical equipment or travel expenses not otherwise covered by insurance. We also pay for specialized memorabilia such as engraved lockets, urns, etc., for those who lost their little ones.

To provide resources and support to families affected by Edwards Syndrome/Trisomy 18, and other rare diseases, while changing the medical perspective through advocacy, education, and public policy.

The mission of Simon's Law is to create national awareness and protection for medically endangered pediatric dependents with life-threatening diagnoses through education, accountability, parental rights legislation, and the Patients' Bill of Rights.

The mission of Simon's Kids is to seek and foster fair and equal access to life-saving medical treatment for pediatric dependents with life-threatening diagnoses by equipping and empowering parents/legal guardians, through education, advocacy, resources, and national awareness.

The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision-making for optimal services and support for children and their families.