Partnerships
E.WE Foundation
To provide resources and support to families affected by Edwards Syndrome/Trisomy 18, and other rare diseases, while changing the medical perspective through advocacy, education, and public policy.
TRIS Project
The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision-making for optimal services and support for children and their families.
Verity's Village
Verity’s Village provides encouragement, education, and practical support for families who receive a life-limiting prenatal diagnosis for their baby. Our vision is to change the narrative surrounding genetic anomalies from heartache to hope!
Simon's Law
The mission of Simon’s Law is to create national awareness and protection for medically endangered pediatric dependents with life-threatening diagnoses through education, accountability, parental rights legislation, and the Patients’ Bill of Rights.
Simon's Kids
The mission of Simon’s Kids is to seek and foster fair and equal access to life-saving medical treatment for pediatric dependents with life-threatening diagnoses by equipping and empowering parents/legal guardians, through education, advocacy, resources, and national awareness.
Olivia's Odyssey
Provide support, encouragement, and hope to families who are facing the unimaginable challenge of having a child with a serious illness. Helping break the barrier between affording fair care.
Born Abel
Born Abel exists to highlight and normalize the humanity, worth, and abilities of babies and children born with complex health conditions. We provide mom-to-mom support – connecting families with advocacy resources, helping supply baby and pregnancy necessities, and showcasing these amazingly abeled children in colorful, kid-friendly books.
Bella's Bumbas
Our mission is global mobility. We strive to provide wheelchairs for kids in need who otherwise would not have an option of independent mobility given to them. We want to see these amazing kids active, involved, and leading their best lives all over the world!
Asher's Answer
Asher’s Answer Inc. is a nonprofit organization devoted to supporting families of babies diagnosed with rare trisomies. Our mission is to offer financial support to trisomy families for uncovered costs associated with the medical issues these babies and children face.
