Our organization is collaborating with the renowned Tracking Rare Incidence Syndromes (TRIS) project with a common goal in mind; to expand their vast database of Trisomy 18 families. The TRIS project is an established platform dedicated to increasing awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision-making for optimal services and support for children and their families.
Through this partnership, we aim to further their mission and achieve our objective of providing support to more families affected by Trisomy 18. In addition, through this joint initiative, we urge families to complete the TRIS project survey available on their website. Completed surveys provide essential information and valuable insights to better address the needs of the Trisomy 18 community through presentations, publications, and working directly with families.
Don’t hesitate to visit the TRIS project’s website, enroll, and complete the survey through the button below. Rest assured, our team will continue to work diligently alongside the TRIS project to support as many families as possible.