Educational Books

We here at, the Edwards’ Syndrome Association, believe that education is important to help our advocating journey! A list of books have been compiled for parents of ES/Trisomy 18 children. Trisomy 18 Education is very important on this journey! As more of our children are living longer, we are learning their needs and how to meet them. We will be adding to the list as time goes on.

If you have any books that you feel need to be in this list you can submit a resource! We will happy to check it out and add it on!


  1. Teaching Motor Skills to Children with Cerebral Palsy and other similar movement disorders – A Guide for Parents and Professionals – Sieglinde Martin, M.S., PT
  2. Fine Motor Skills for children with Down Syndrome – A guide for Parents and Professionals – MaryAnne Bruni, BSCOT (Reg)
  3. Gross Motor Skills for children with Down Syndrome – A Guide for Parents and Professionals – Patricia C. Winders, PT
  4. Early Communication Skills for Children with Down Syndrome – A Guide for Parents and Professionals -Libby Kumin, Ph.D., CCC-SLP
  5. Guide and Grow -Baby’s 1st Year: A monthly Guide to Development, Milestones and Activities to Support Baby’s Development – Sharon Drewlo, OTR/L, CIMI
  6. Speech Therapy for Toddlers: Develop Early Communication Skills with 137 Games designed by a Speech and Language Therapist – Kids SLT Publications
  7. Integrating Primitive Reflexes through Play and Exercise: An Interactive Guide to the Moro Reflex for Parents, Teachers and Service Providers – Kokeb Girman MdDonald, OTR/L


  1. Wrightslaw: All About IEPs – Pam and Pete Wright –
  2. Wrightslaw: From Emotions to Advocacy: The Special Education Survival Guide – Pam and Pete Wright –
  3. Wrightslaw: Special Education Law –


  1. The Symphony of Reflexes: Interventions for Human Development, Autism, ADHD, CP, and Other Neurological Disorders – Bonnie L. Brandes, MeD –
  2. Kids Beyond Limits: The Anat Baniel Method for Awakening the Brain and Transforming the Life of Your Child with Special Needs- Anat Baniel –
  3. Fit Baby, Smart Baby, Your Baby: From Birth to Age Six – Glenn Doman, Douglas Doman, Bruce Hagy –
  4. How Smart is your Baby? Develop and Nurture your Newborn’s Full Potential – Glenn Doman, Janet Doman –
  5. What to do about your Brain-Injured Child – Glenn Doman –
  6. Active Baby, Healthy Brain: 135 Fun Exercises and Activities to Maximize Your Child’s Brain Development from Birth to 5 ½ – Margaret Sasse – 


  1. Cure your Child with Food: The Hidden Connection Between Nutrition and Childhood Ailments – Kelly Dorfman, MS, LND –
  2. The Smart Baby Cookbook: Boost your Baby’s Immunity and Brain Development – Dr. Natalia Vollrath-Hale, Lauren Cheney –
  3. The Big Book of Organic Baby Food: Baby Purees, Finger Foods & Toddler Meals for Every Stage – Stephanie Middleburg MS,RD,CDN  –

Trisomy 18 Education Specific

  1. Although you’re little – Brooke Renton –
  2. Julia’s like me: Meet a Girl with Trisomy 18 – Tamara Dever, Erin Stark –
  3. Bella’s Gift: How One Little Girl Transformed Our Family and Inspired a Nation – Rick Santorum, Karen Santorum, Elizabeth Santorum –
  4. When Wishes Change: What if the Thing You Feared Most Brings More Than You Dreamed? – Tricia Roos –
  5. I Am Not a Syndrome – My Name is Simon – Sheryl Crosier –
  6. Our Baby Will be Different – Girl – Beverly Jackson –                                  
  7. From Diagnosis to Delivery: What to Expect When the Unexpected Happens During Your Pregnancy – Beverly Jackson –