Edwards' Syndrome Family Directory
Family PhotoParent's NamesChild's NameSiblings' NamesLocation (State or Country)Child's DiagnosisOther Diagnosis
Lila Whitaker Kayse Gale and SeanLilaWilliam and HoldenKalamazoo, MichiganFull Trisomy 18
Milagros " Mila" Rita Keller AlcaláMargarita, ChristianMilagros " Mila" RitaMargarita, Christian, Max,
Katharyne, Natalia		CaliforniaFull Trisomy 18
Annalea Voyles Matthew and AdrianeAnnaleaTanner, Gavin, Reese,
Marshall, Jonas, Lucas,
Lincoln, Evie, Elise,
Josie, Novi		IndianaFull Trisomy 18
Sawyer WallaceDezrae and RileySawyerOhioTrisomy 18
Amogelang Marumoloa AmogelangGorataoneOreneetseRepublic of South AfricaEdward's Syndrome (Trisomy 18)
Layla Marie dossJennifer and Billy Layla Marie LillyVirginiaTrisomy 18
Jonah Haley and CalebJonahAlabamaMosaic Trisomy 18
LIllian MorrisBrittany and Josh LIllianLiam and JaceKentuckyFull Trisomy 18, Full Trisomy X, Quad CP, Dystonia
Harper JohnstonDillon and HaleyHarperBakerTexasFull Trisomy 18
Delilah Elizabeth JarrellKennedy and WilliamDelilah ElizabethJacobMississippiFull Trisomy 18
Deacon Asher EmersonColt and Tara Deacon AsherSabin, Pierce, Emma
Reese, Ledger		TexasFull Trisomy 18
no imageElizabeth and ErickEleanor JaneLindsey and SpencerKentuckyTrisomy 18
Olivia RentonJordan and BrookeOliviaKelsey, Harper, Caden,
Colin, Julie		FloridaFull Trisomy 18
Faith Marie SpicherBrandi & DerykFaith MarieJacquelyn and TylerPennsylvaniaEdward's Syndrome (Trisomy 18)
Janessa Brielle HunsellMelissa and BenJanessa BrielleJohn, Cerena, Savanna,
Baron, Ryan, Gypsy,
Jolee		MissouriFull Trisomy 18
Verity JacobsonTed and BeverlyVerityCharis, Tobin, Arden,
Kenna, Lucan, Zaden, Seanin,
Rhema		ColoradoFull Trisomy 18
Julia ChoeTrisha and Jason Julia Winston, OliviaAustin, TXFull Trisomy 18
AsherBrian and AngieAsherNorth CarolinaFull Trisomy 18
HigginsDavid and AmberHigginsEmily, Aaron, Bailey,
Eva, Matilda		Seattle, WATrisomy 18
Ivy MaupinErin and PaulIvyChloeVirginiaFull Trisomy 18
Hope May HouwelingJosh and BrittanyHope MayDayna, Mya, Toby,
Addalyn		Canada, OntarioFull Trisomy 18
Brandon and BambiBrandon and BambiBraydenAmelia & ShawnLouisianaTrisomy 18
June and JoshuaJune and JoshuaAlistairRexIllinoisPartial Trisomy 18
no imageErin and AdamHaileyNoahMassachusettsPartial Trisomy 18
Tim and ErinTim and ErinBrooklynConnecticutFull Trisomy 18
no imagePaul and StephanieJesseJude, John, AdairVirginiaFull Trisomy18
Luke and MandiLuke and MandiEllieEmma, AveryTennesseeFull Trisomy 18Hypotonia
Allen and EmilieAllen and EmiliePatriciaWashingtonFull Trisomy 18Hand Difference, G-tube, torticollis, plagiocephaly
Laurel and AdrianLaurel and AdrielFaithDakota, Alaska, Atlas, WestCaliforniaFull Trisomy 18
no imageClint and MadelynCharlotteTitus, Moses, AtticusNorth CarolinaFull Trisomy 18Omphalocele, clubbed feet, severe heart defect, hydrocephalus, myelomeningocele
JOye and ZakJoye and ZakBenjaminTianna, Jake, JaxnNevadaMosaic Trisomy 18Long gap esophageal atresia, scoliosis, ASD, VSD, pulmonary hypertension, hypoxia, Physical and developmental delayed, nonverbal, trach and vent dependent, tube fed, low bowel motility
JenniferJenniferAngelMichael, JesseUSAFull Trisomy 18Pulmonary Hypertention, Congenital heart condition( TOF), GJ tube fed,Epilepsy,Chronic lung disease
TanichaTanichaJavierPennsylvaniaFull Trisomy 18Blind, Retina detachment botheyes, glaucoma left eye
Patty and ZachPatty and ZachLeoLucca, BrodyDelawareMosaic Trisomy 18
no imageKellyEmmaMatthewMarylandMosaic Trisomy 18CVI, TOF, Conductive Hearing Loss, G-Tube, Sleep Apnea, Hypotonia
Jeanna and RobertJeanna and RobertMiaMadisonIllinoisFull Trisomy 18VSD, Sleep Apnea, Epilepsy, Conductive Hearing Loss, G-Tube, Hypotonia, Pancreatic Insufficiency, Hydrocephalus
KimberlyKimberly and PatrickGeorgiaNolan, Gavin, RileyGeorgiaPartial Trisomy 18, Partial Monosomy 9
Crystal and MikeCrystal and MikeGunnarTanner, Jacob, Jazmine, Cody
KentuckyMosaic Trisomy 18Sensineural Hearing Loss, Scoliosis, G-Tube, CVI
Brandon and Katie, Edwards Syndrome FamilyBrandon and KatieFionaXander, AnyaIllinoisMosaic Trisomy 18
Edwards Syndrome FamilyJessica and LuisAndyGabe, NoahGeorgiaFull Trisomy 18Mixed Hearing Loss, TOF, CVI, G-Tube, Sleep Apnea, Hypotonia, Chronic Lung Disease, Limb Differences, Omphalocele
Kassie and ShaunKassie and ShaunCharlieHaydenFull Trisomy 18
Catherine and PeterCatherine and PeterCharlieAndrew, Tessa, CooperNew YorkPartial Trisomy 18
no imageBianca and JohanLandryLily, Lincoln, LochlanTennesseeFull Trisomy 18
no imageJenna and TraciMileyAleah, Serenity, Joseph, Dezlyn, Caiden, EmersynFull Trisomy 18VSD, Pulmonary Hypertension
Paisha and MattPaisha and MattPaigePaitynPartial Trisomy 18
Angel and AaronAngel and AaronEsmeFloridaFull Trisomy 18
Kennedy and WilliamKennedy and WilliamDelilahJacobMississippiFull Trisomy 18
no imageNatalie and JamesJonahEthan, GrahamMarylandFull Trisomy 18
FamilyJessie and MattAbelJacob, Gabe, Violet, Amelia, Levi, OrenMinnesotaMosaic Trisomy 18Omphalocele, VSD
no imageKim and JohnParkerAlexis, Jordynne, BrittonFull Trisomy 18
FamilyMaria and ValeriaNataliaLaylaGeorgiaFull Trsiomy 18
no imageAngelia and MicahAureliaColoradoPartial Trisomy 18
FamilyHeidi and KennySajjonaSeth, Brandon, Jory, Kelseigh, SaygeFull Trisomy 18
FamilyRaquel and AubreyJoleneRomeo, MicahTennesseeFull Trisomy 18
FamilyTammy and JoelBrooklynMeghan, DerekFull Trisomy 18Pulmonary Hypertension, VSD, ASD
FamilyJeff and CatAdelynAutumnGeorgiaFull Trisomy 18Tetralogy of Fallot (repaired)
FamilyBill and KimAmeliaWill, CharlotteOhioFull Trisomy 18Pulmonary Hypertension with Eisenmeingers Physiology, Vent/O2 dependent, Hypotonia, Mixed Hearing Loss, No visual light perception (left eye), gtube, clotting disorder
FamilyGeoff and AmeliaOliveConnor, Samantha, Kimberly, Penny, MaggieTennesseeMosaic Trisomy 18HOH, Global Delay, Kidney Reflux G4, VSD/ASD/PDA, Gtube Fed
FamilyYlonaTaylorMarissaThe NetherlandsFull Trisomy 18Possible Ehlers Danlos Syndrome
no imageRobinIvyCourtneyFull Trisomy 18CP, LGS, Hypothyroidism
Trisomy FamilyMegan and BillyRosalieShiloh, Cosmo, GideonMassachusettsFull Trisomy 18
Trisomy FamilyJordan and TemberHavenRexFloridaFull Trisomy 18
Trisomy FamilyRenee and DustinMaegenKole, Reid, Evan, HayesMississippiMosaic Trisomy 18CPAM Surgery Survivor at 2 days old, Pulmonary Hypertension, VSD, ASD, PDA
Trisomy FamilyApril and JasonAaronEmery, AveryTennesseeFull Trisomy 18Gtube, Trach with ventilator, 2 small VSDs, Hearing impaired with BAHA
Trisomy FamilyEmily and AaronLukeJoaoMichiganFull Trisomy 18
Trisomy FamilyMark and DawnLeviJordan, GunnisonOklahomaFull Trisomy 18
Trisomy FamilyJulie and JeffreyRyleeCamden, Shelby, Sierra, Natalie, Nicole, Leslie, JeffreyNew JerseyMosaic Partial Trisomy 18Duplication 9P, Autism, Epilepsy, Anxiety, Depression
Trisomy FamilyPaulineMollieWiggy, Bayley, Mads, Abigail, QuinnyNew ZealandFull Trisomy 18
Trisomy FamilyKatie and DavidIsabel "Izzie"Eliana, AdelynTennesseeFull Trsiomy 18
Trsiomy FamilyGabi and MitchellBruceEliTexasFull Trsiomy 18Seizure Disorder
Trisomy FamilyChris and EmilyMary TeresaSarah, Ann, ElizabethLouisianaFull Trisomy 18Hepatoblastoma, Hydronephrosis
Trisomy 18 Family DirectoryCory and HeidiMaebryVeraNew HampshirePartial Trisomy 18Wolf-Hirshhorn
Trisomy 18 Family DirectoryJennifer and AngelAva LynnAnastasia, Angel Hugo, Arielle, Asher JudeFloridaFull Trisomy 18Eisenmenger Syndrome
Trisomy 18 Family DirectoryHenry and BrianLaelynnFull Trisomy 18Coarctation of the Aorta, Epilepsy, Horseshoe Kidney
Trisomy 18 Family DIrectoryJessica and MitchMiloAlabamaFull Trisomy 18Spina Bifida
Trisomy 18 Family DirectoryErin and PaulIvyChloeVirginiaFull Trisomy 18Pulmonary Hypertension, Unrepaired VSD/ASD, CVI, Hepatoblastoma
Trisomy 18 Family DIrectoryHeidi and TylerAryabelleAlexSurrey, British Columbia, CanadaFull Trisomy 18Small VSD, Cerebellar Hypoplasia, Duplex Kidney (Right)
Trisomy FamilyRobert and MichelleJamesAuburn, Bentley, BrookelynnAlabamaFull Trisomy 18DexaCardia
Trisomy 18 Family DirectoryStephanie and CharlieMadisonGage, DixieKentuckyFull Trisomy 18CHD, Hepatoblastoma
Trisomy FamilyMiranda and SeanMaeveMaineFull Trisomy 18
Trisomy FamilyMaurceaZaraMaurcel, O'MauriOklahomaFull Trisomy 18
Parent's NamesLocation (State or Country)Child's DiagnosisOther Diagnosis
Kayse Gale and SeanKalamazoo, MichiganFull Trisomy 18
Margarita, ChristianCaliforniaFull Trisomy 18
Matthew and Adriane IndianaFull Trisomy 18
Dezrae and RileyOhioTrisomy 18
AmogelangRepublic of South AfricaEdward's Syndrome (Trisomy 18)
Jennifer and BillyVirginiaTrisomy 18
Haley and CalebAlabamaMosaic Trisomy 18
Brittany and JoshKentuckyFull Trisomy 18, Full Trisomy X, Quad CP, Dystonia
Dillon and HaleyTexasFull Trisomy 18
Kennedy and WilliamMississippiFull Trisomy 18
Colt and TaraTexasFull Trisomy 18
Elizabeth and ErickKentuckyTrisomy 18
Jordan and BrookeFloridaFull Trisomy 18
Brandi & DerykPennsylvaniaEdward's Syndrome (Trisomy 18)
Melissa and BenMissouriFull Trisomy 18
Ted and BeverlyColoradoFull Trisomy 18
Trisha and JasonAustin, TXFull Trisomy 18
Brian and AngieNorth CarolinaFull Trisomy 18
David and AmberSeattle, WATrisomy 18
Erin and PaulVirginiaFull Trisomy 18
Josh and BrittanyCanada, OntarioFull Trisomy 18
Brandon and BambiLouisianaTrisomy 18
June and JoshuaIllinoisPartial Trisomy 18
Erin and AdamMassachusettsPartial Trisomy 18
Tim and ErinConnecticutFull Trisomy 18
Paul and StephanieVirginiaFull Trisomy18
Luke and MandiTennesseeFull Trisomy 18Hypotonia
Allen and EmilieWashingtonFull Trisomy 18Hand Difference, G-tube, torticollis, plagiocephaly
Laurel and AdrielCaliforniaFull Trisomy 18
Clint and MadelynNorth CarolinaFull Trisomy 18Omphalocele, clubbed feet, severe heart defect, hydrocephalus, myelomeningocele
Joye and ZakNevadaMosaic Trisomy 18Long gap esophageal atresia, scoliosis, ASD, VSD, pulmonary hypertension, hypoxia, Physical and developmental delayed, nonverbal, trach and vent dependent, tube fed, low bowel motility
JenniferUSAFull Trisomy 18Pulmonary Hypertention, Congenital heart condition( TOF), GJ tube fed,Epilepsy,Chronic lung disease
TanichaPennsylvaniaFull Trisomy 18Blind, Retina detachment botheyes, glaucoma left eye
Patty and ZachDelawareMosaic Trisomy 18
KellyMarylandMosaic Trisomy 18CVI, TOF, Conductive Hearing Loss, G-Tube, Sleep Apnea, Hypotonia
Jeanna and RobertIllinoisFull Trisomy 18VSD, Sleep Apnea, Epilepsy, Conductive Hearing Loss, G-Tube, Hypotonia, Pancreatic Insufficiency, Hydrocephalus
Kimberly and PatrickGeorgiaPartial Trisomy 18, Partial Monosomy 9
Crystal and MikeKentuckyMosaic Trisomy 18Sensineural Hearing Loss, Scoliosis, G-Tube, CVI
Brandon and KatieIllinoisMosaic Trisomy 18
Jessica and LuisGeorgiaFull Trisomy 18Mixed Hearing Loss, TOF, CVI, G-Tube, Sleep Apnea, Hypotonia, Chronic Lung Disease, Limb Differences, Omphalocele
Kassie and ShaunFull Trisomy 18
Catherine and PeterNew YorkPartial Trisomy 18
Bianca and JohanTennesseeFull Trisomy 18
Jenna and TraciFull Trisomy 18VSD, Pulmonary Hypertension
Paisha and MattPartial Trisomy 18
Angel and AaronFloridaFull Trisomy 18
Kennedy and WilliamMississippiFull Trisomy 18
Natalie and JamesMarylandFull Trisomy 18
Jessie and MattMinnesotaMosaic Trisomy 18Omphalocele, VSD
Kim and JohnFull Trisomy 18
Maria and ValeriaGeorgiaFull Trsiomy 18
Angelia and MicahColoradoPartial Trisomy 18
Heidi and KennyFull Trisomy 18
Raquel and AubreyTennesseeFull Trisomy 18
Tammy and JoelFull Trisomy 18Pulmonary Hypertension, VSD, ASD
Jeff and CatGeorgiaFull Trisomy 18Tetralogy of Fallot (repaired)
Bill and KimOhioFull Trisomy 18
Geoff and AmeliaTennesseeMosaic Trisomy 18HOH, Global Delay, Kidney Reflux G4, VSD/ASD/PDA, Gtube Fed
YlonaThe NetherlandsFull Trisomy 18Possible Ehlers Danlos Syndrome
RobinFull Trisomy 18CP, LGS, Hypothyroidism
Megan and BillyMassachusettsFull Trisomy 180
Jordan and TemberFloridaFull Trisomy 180
Renee and DustinMississippiMosaic Trisomy 18CPAM Surgery Survivor at 2 days old, Pulmonary Hypertension, VSD, ASD, PDA
April and JasonTennesseeFull Trisomy 18Gtube, Trach with ventilator, 2 small VSDs, Hearing impaired with BAHA
Emily and AaronMichiganFull Trisomy 180
Mark and DawnOklahomaFull Trisomy 180
Julie and JeffreyNew JerseyMosaic Partial Trisomy 18Duplication 9P, Autism, Epilepsy, Anxiety, Depression
PaulineNew ZealandFull Trisomy 180
Katie and DavidTennesseeFull Trsiomy 180
Gabi and MitchellTexasFull Trsiomy 18Seizure Disorder
Chris and EmilyLouisianaFull Trisomy 18Hepatoblastoma, Hydronephrosis
Cory and HeidiCory and HeidiPartial Trisomy 18Wolf-Hirshhorn
Jennifer and AngelFloridaFull Trisomy 18Eisenmenger Syndrome
Henry and Brian0Full Trisomy 18Coarctation of the Aorta, Epilepsy, Horseshoe Kidney
Jessica and MitchAlabamaFull Trisomy 18Spina Bifida
Erin and PaulVirginiaFull Trisomy 18Pulmonary Hypertension, Unrepaired VSD/ASD, CVI, Hepatoblastoma
Heidi and TylerSurrey, British Columbia, CanadaFull Trisomy 18Small VSD, Cerebellar Hypoplasia, Duplex Kidney (Right)
Ribert and MichelleAlabamaFull Trisomy 18DexaCardia
Stephanie and CharlieKentuckyFull Trisomy 18CHD, Hepatoblastoma
Miranda and SeanMaineFull Trisomy 180
Maurcea0Full Trisomy 180