Hospital Awareness & Dignity Support for Trisomy 18
A scalable hospital partnership program that strengthens family-centered care, clinical awareness, and rare disease visibility within pediatric and NICU settings.
Why Hospital Awareness Matters
Children diagnosed with Trisomy 18 often experience:
Variable understanding of prognosis among staff
Bias in care discussions
Limited visible advocacy materials in hospital settings
Family isolation during extended admissions
Hospitals implementing awareness initiatives report:
Improved family engagement
Increased interdisciplinary understanding
Stronger patient-centered care alignment
Enhanced dignity-focused practice
The Breaking Barriers Hospital Display Program
ESA provides professionally designed awareness materials that integrate seamlessly into pediatric and NICU environments.
1. Awareness Materials
Hospital room posters (12×16, 18×24)
Window clings
2. Family Support Integration
Delivered at family request or through hospital partnership
Reinforces visible advocacy during inpatient stays
3. Institutional Collaboration
Unit-level or system-wide implementation
Flexible Implementation Options
Institutional Partnership Opportunities
We collaborate with:
- NICUs
- Pediatric Orthopedics
- Genetic Departments
- Maternal-Fetal Medicine
- Children’s Hospitals
- Academic Medical Centers
Partnership Options:
- Unit-Level Participation
- System-Wide Rollout
- Sponsored Awareness Campaign
- Educational Collaboration
Who This Program Supports
Designed to serve both healthcare institutions and families navigating aTrisomy 18 diagnosis
For Hospitals & Clinical Teams
Bring structured awareness and dignity-centered care into your unit.
- Improve family experience during inpatient stays
- Support interdisciplinary understanding
- Align with patient-centered care standards
- Strengthen rare disease inclusion initiaves
For Families & Caregivers
If your child is currently hospitalized, ESA can help ensure they are seen. supported, and surrounded by awareness.
- Request hospital display materials
- Bring visibility to your child’s diagnosis
- Connect to additional ESA resources
Family Support Request
Bring Visibility Into Hospital Spaces
Through the Breaking Barriers Program, families and hospitals work together to create environments where children with Trisomy 18 are seen, valued, and supported.
These small but powerful displays help shift conversations, reduce isolation, and reinforce dignity-centered care.
Partner with ESA to Strengthen Care
Whether you are a hospital leader, clinician, or parent, this program creates meaningful impact at the bedside – where awareness, dignity, and support matter most
