Hospital Awareness & Dignity Support for Trisomy 18

A scalable hospital partnership program that strengthens family-centered care, clinical awareness, and rare disease visibility within pediatric and NICU settings.

Why Hospital Awareness Matters

Children diagnosed with Trisomy 18 often experience:

Variable understanding of prognosis among staff
Bias in care discussions
Limited visible advocacy materials in hospital settings
Family isolation during extended admissions

Hospitals implementing awareness initiatives report:

Improved family engagement
Increased interdisciplinary understanding
Stronger patient-centered care alignment
Enhanced dignity-focused practice

The Breaking Barriers Hospital Display Program

ESA provides professionally designed awareness materials that integrate seamlessly into pediatric and NICU environments.

1. Awareness Materials

Hospital room posters (12×16, 18×24)
Window clings

2. Family Support Integration

Delivered at family request or through hospital partnership
Reinforces visible advocacy during inpatient stays

3. Institutional Collaboration

Unit-level or system-wide implementation
Flexible Implementation Options

Institutional Partnership Opportunities

We collaborate with:

NICUs
Pediatric Orthopedics
Genetic Departments
Maternal-Fetal Medicine
Children’s Hospitals
Academic Medical Centers

Partnership Options:

Unit-Level Participation
System-Wide Rollout
Sponsored Awareness Campaign
Educational Collaboration

Celebrate Your Warrior — Join the Breaking Barriers Movement

Child Name:

Parent(s) Name:

Parent Email:

Street Address:

City:

State:

Zip Code

Yes, I consent to The Edwards Syndrome Association (ESA) using the information provided on this form for the purposes outlined below.

Poster

12 x 16 18 x 24

Window Cling

12 x 16

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