Meet rockstar, Lilliana! -Lilliana has Full Trisomy 18 aka Edwards Syndrome and was born in September of 2021.She and her family are amazing. Look at the joy, love, and happiness in that beautiful face.Keep inspiring, Lilliana.
Meet Davi Lucas!Davi will turn 9 this year and has Full Trisomy 18 aka Edwards SyndromeHe is a warrior and an inspiration!
Meet Danny! He is 10 years old with Full Trisomy 18.His family says, “He is full of smiles, love, and snuggles. He is very perceptive and learns how to communicate without speaking. He is our world and we wouldn’t change a thing.”We hope Danny gives you inspiration. He is 10 and thriving. Despite what many…
Janie Mae is almost 5 months old and has Full trisomy 18 aka Edwards Syndrome.In the words of her mama, “Janie is truly my biggest blessing and I wouldn’t trade this journey for anything. I know it’s only been 5 months, but to me she was breaking barriers with this diagnosis before she was even…
Meet Wylie! Wylie is 5 and has Full Edwards Syndrome. In the words of her Mama, “Wylie is a world changer. She has changed our world for the better. She is fearless, trusting, sweet, and very smiley. I always say she is the best gift we never knew to ask God for.” Wylie, you sure…
Meet Raphtalia. She is four months old and weighs 10.5 pounds. She will start using the regular nasal canula soon! Such a big milestone. Raphtalia was a dalmatian and Minnie Mouse for Halloween. She is a rockstar and the cutest little girl.Keep being amazing, Raphtalia!
Meet Precious, Rynnie. She was born on April 13, 2022, and has Full Trisomy 18 aka Edwards Syndrome.In the words of her mom, “She’s my miracle. She’s a picture of innocent joy. I love her and want the world to see that it’s both Hard AND beautiful being a mommy to my Edwards syndrome Miracle.”Rynnie…
Adelyn’s Inspirational Story We were told our daughter might never take her first breath—but Adelyn arrived, defying all odds, in December 2019. Born with Tetralogy of Fallot, a complex heart defect, she immediately began her journey of overcoming challenges. Initially relying on an NG tube after a failed swallow study, we took her home under…
“Maeve recently celebrated her 1st birthday—a milestone that fills us with immense pride and joy! Now approaching 15 months, she loves waving ‘Hi’ to everyone she sees, especially when they wave back. She’s getting stronger each day, sitting up independently for longer periods, and mastering her head control (as long as she’s not too sleepy,…
Ivy’s Miracle Story When Ivy was diagnosed with full Trisomy 18, doctors prepared us for the possibility that she might only have days to live. Today, against all odds, Ivy is over 100 days old and growing stronger every day! Throughout her journey—spending more than 100 days in hospitals, undergoing numerous tests and procedures, and…
Alejandro Thriving Story Do you remember Alejandro, our very first Thriving Thursday Warrior? His proud mama submitted his story again because he’s just that incredible! Alejandro was born on November 3, 2020, and continues to amaze us all. We’re honored to celebrate and feature his inspiring journey for the second time. We can’t wait to…
Gemma Miracle Story At 13 weeks pregnant, I received the diagnosis that my baby girl, Gemma, had Trisomy 18. From that moment on, it felt like every doctor’s appointment brought more heartbreaking news. I was repeatedly told that she wouldn’t be breathing at birth—but Gemma proved them wrong. Despite being told by some that my…
Meet Faith – Thriving at 3 Years Old! Faith W. is now 3 years old and proving the odds wrong every single day! Born with Full Trisomy 18, doctors said she likely wouldn’t survive the pregnancy and encouraged abortion throughout. After birth, she faced heart issues that required repair and was on over 13 medications….
Meet Navy – Thriving at Almost 8 Months Old! Navy is almost 8 months old and full of energy — she’s definitely found her voice! She has already undergone a VSD closure and a diaphragm plication and is scheduled for a G-tube surgery in mid-January. This little warrior has come so far — from starting…
Meet Harper – Thriving at 6 Years Old! Harper is 6 years old and living with Full Trisomy 18. She was born on February 15, 2018, and has been thriving since her open-heart surgery at 10 months old. Her family hopes to share her story to inspire other families and help educate medical professionals. Keep…
Meet Joey – Thriving at 4 Years Old! Joey is an incredible 4-year-old with Full Trisomy 18 — and he absolutely loves to swim! He thrives in the water, and it’s clear that the pool is his happy place. Just look at him living his best life! Keep breaking barriers and making waves, Joey —…
Meet Amelia – Thriving at 3.5 Years Old! Amelia is 3.5 years old and showing the world what it means to thrive with Full Edwards Syndrome (Trisomy 18)! Her family shares, “Amelia is almost 4 years old and thriving with Trisomy 18. She has an unrepaired VSD and pulmonary hypertension, but she doesn’t let that…
Meet Lillian – A True Edwards’ Syndrome Warrior! Lillian is 2 years old and a shining example of strength and resilience with Full Edwards’ Syndrome! Her family shares, “Lillian is the sweetest little girl and brings so much joy to our lives! She continues to amaze us and prove all the doctors wrong! Her smile…
Addie’s Big Step Forward at 16 Months Patricia, lovingly called Addie by her family, is 16 months old and full of personality! She’s often the most charming presence in the room and is making steady progress at her own pace in therapy. In this sweet moment, Addie is trying a candy cane for the first…
Maeve’s Incredible Journey at 10 Months Maeve is 10 months old and thriving with Full Edwards’ Syndrome! Her family shares, “Maeve has grown so much! She got her G-tube placed, found her beautiful smile, can almost sit up unassisted, and loves playing with her toys. We continue to work with PT and OT to help…
Meet Maria Elena: Defying Odds and Spreading Joy Maria Elena is a vibrant 6-year-old living with Full Trisomy 18, and she’s proving every day that she is unstoppable. Doctors didn’t expect her to survive birth, and if she did, they predicted she would only live a year without awareness of the world around her. But…
Meet Miley, a joyful four-year-old who is rewriting the narrative of what it means to live with Full Edwards Syndrome (Trisomy 18). Miley joined our family through adoption when she was just 2.5 years old, and from that moment on, she has filled our lives with light, laughter, and resilience. Due to her complex medical…
Meet Natalia! This incredible fighter has been doing amazing lately! She’s now off the vent almost all day, except while sleeping, and has been working hard in physical therapy. Natalia can even sit up on her own for a few minutes! Her family shares, ‘This is the best she’s ever been, and we’ll keep fighting…
Meet Landry! This little warrior has been beating the odds since birth. His family shares, ‘Landry had an 11-day NICU stay and was diagnosed with Full Trisomy 18 at just 5 days old. Remarkably, he hasn’t needed any surgeries so far. He’s currently in the 6th percentile on the typical growth chart and loves to…
Meet Lia, a 14-month-old warrior with Full Trisomy 18! Her family shares, ‘Lia has made incredible progress in therapy, working hard on her vision and tracking skills. She smiles often and responds to a variety of sounds. She enjoys playing color games on the iPad, listening to music, going on walks, and spending time with…
