Meet Joey – Thriving at 4 Years Old!
Joey is an incredible 4-year-old with Full Trisomy 18 — and he absolutely loves to swim!
He thrives in the water, and it’s clear that the pool is his happy place. Just look at him living his best life!
Keep breaking barriers and making waves, Joey — you’re amazing! 💙
Meet Landry! This little warrior has been beating the odds since birth. His family shares, ‘Landry had an 11-day NICU stay and was diagnosed with Full Trisomy 18 at just 5 days old. Remarkably, he hasn’t needed any surgeries so far. He’s currently in the 6th percentile on the typical growth chart and loves to…
Meet Ella, a joyful 3-year-old with full Trisomy 18! Her family says, ‘Ella is beyond belief. Despite her T18 diagnosis, the only ongoing treatment she needs is tube feeding for slow growth—medically, she’s perfect! She’s crushing milestones we were told she’d never reach and is the happiest little girl we know!
Maeve’s Incredible Journey at 10 Months Maeve is 10 months old and thriving with Full Edwards’ Syndrome! Her family shares, “Maeve has grown so much! She got her G-tube placed, found her beautiful smile, can almost sit up unassisted, and loves playing with her toys. We continue to work with PT and OT to help…
Meet Felicity, a brave 7-year-old with full Trisomy 18! Her family describes her as a sweet little warrior princess who has overcome incredible challenges. Felicity’s journey has taken her from relying on a wheelchair with full-body supports, being 100% tube-fed, and needing oxygen and constant monitoring, to now running, playing, and eating completely by mouth….
Meet Precious, Rynnie. She was born on April 13, 2022, and has Full Trisomy 18 aka Edwards Syndrome.In the words of her mom, “She’s my miracle. She’s a picture of innocent joy. I love her and want the world to see that it’s both Hard AND beautiful being a mommy to my Edwards syndrome Miracle.”Rynnie…
Adelyn’s Inspirational Story We were told our daughter might never take her first breath—but Adelyn arrived, defying all odds, in December 2019. Born with Tetralogy of Fallot, a complex heart defect, she immediately began her journey of overcoming challenges. Initially relying on an NG tube after a failed swallow study, we took her home under…
