Javier (Full) 2 years old

Meet Miley, a joyful four-year-old who is rewriting the narrative of what it means to live with Full Edwards Syndrome (Trisomy 18). Miley joined our family through adoption when she was just 2.5 years old, and from that moment on, she has filled our lives with light, laughter, and resilience. Due to her complex medical…

Meet Amelia – Thriving at 3.5 Years Old! Amelia is 3.5 years old and showing the world what it means to thrive with Full Edwards Syndrome (Trisomy 18)! Her family shares, “Amelia is almost 4 years old and thriving with Trisomy 18. She has an unrepaired VSD and pulmonary hypertension, but she doesn’t let that…

Janie Mae is almost 5 months old and has Full trisomy 18 aka Edwards Syndrome.In the words of her mama, “Janie is truly my biggest blessing and I wouldn’t trade this journey for anything. I know it’s only been 5 months, but to me she was breaking barriers with this diagnosis before she was even…

Addie’s Big Step Forward at 16 Months Patricia, lovingly called Addie by her family, is 16 months old and full of personality! She’s often the most charming presence in the room and is making steady progress at her own pace in therapy. In this sweet moment, Addie is trying a candy cane for the first…

Sajjona’s mom recalls, ‘We were told she wouldn’t live more than two weeks, and abortion was recommended due to no hope.’ But here we are—five years and eight months later! Sajjona speaks, laughs, cries, and smiles—things they said she’d never do. She lives a vibrant life, attending Sunday School, 4H Club, and Homeschool Club, surrounded…

Maeve’s Incredible Journey at 10 Months Maeve is 10 months old and thriving with Full Edwards’ Syndrome! Her family shares, “Maeve has grown so much! She got her G-tube placed, found her beautiful smile, can almost sit up unassisted, and loves playing with her toys. We continue to work with PT and OT to help…