Javier (Full) 2 years old
Javier has full Trisomy 18 and is 2 years old. He is thriving in his gait trainer! He is compatible with standing and walking! He works very hard with his therapist to hit those milestones!
Javier has full Trisomy 18 and is 2 years old. He is thriving in his gait trainer! He is compatible with standing and walking! He works very hard with his therapist to hit those milestones!
Meet Charlotte, a sweet yet sassy 5-year-old warrior with full Trisomy 18. Her journey began on hospice care at home, with no interventions, but after a month, hospital stays and additional support became essential to help her thrive. With the care of home nursing, early intervention, specialists, and helpful tools, Charlotte achieved a major milestone—graduating…
Meet Raphtalia. She is four months old and weighs 10.5 pounds. She will start using the regular nasal canula soon! Such a big milestone. Raphtalia was a dalmatian and Minnie Mouse for Halloween. She is a rockstar and the cutest little girl.Keep being amazing, Raphtalia!
Faith’s family lovingly calls her ‘the little mustard seed that has moved mountains in so many hearts—especially ours!’ Every day, she shows more of who she is and what she’s capable of. Born at just 3 lbs 9 oz, Faith is now almost 8 lbs and making incredible progress with her breathing. She even enjoys…
Meet Natalia! This incredible fighter has been doing amazing lately! She’s now off the vent almost all day, except while sleeping, and has been working hard in physical therapy. Natalia can even sit up on her own for a few minutes! Her family shares, ‘This is the best she’s ever been, and we’ll keep fighting…
Look at Mia using her eye gaze device! The moment she heard her daddy walk through the door, she lit up—just like any other kid—eager to greet him and ask how his day was. It’s incredible what children with Edwards Syndrome can achieve when given the right tools! Mia turns 4 on Monday, and the…
Meet Precious, Rynnie. She was born on April 13, 2022, and has Full Trisomy 18 aka Edwards Syndrome.In the words of her mom, “She’s my miracle. She’s a picture of innocent joy. I love her and want the world to see that it’s both Hard AND beautiful being a mommy to my Edwards syndrome Miracle.”Rynnie…