Javier (Full) 2 years old

Janie Mae is almost 5 months old and has Full trisomy 18 aka Edwards Syndrome.In the words of her mama, “Janie is truly my biggest blessing and I wouldn’t trade this journey for anything. I know it’s only been 5 months, but to me she was breaking barriers with this diagnosis before she was even…

Meet rockstar, Lilliana! -Lilliana has Full Trisomy 18 aka Edwards Syndrome and was born in September of 2021.She and her family are amazing. Look at the joy, love, and happiness in that beautiful face.Keep inspiring, Lilliana. 

Ivy’s Miracle Story When Ivy was diagnosed with full Trisomy 18, doctors prepared us for the possibility that she might only have days to live. Today, against all odds, Ivy is over 100 days old and growing stronger every day! Throughout her journey—spending more than 100 days in hospitals, undergoing numerous tests and procedures, and…

Meet Lia, a 14-month-old warrior with Full Trisomy 18! Her family shares, ‘Lia has made incredible progress in therapy, working hard on her vision and tracking skills. She smiles often and responds to a variety of sounds. She enjoys playing color games on the iPad, listening to music, going on walks, and spending time with…

Meet Raphtalia. She is four months old and weighs 10.5 pounds. She will start using the regular nasal canula soon! Such a big milestone. Raphtalia was a dalmatian and Minnie Mouse for Halloween. She is a rockstar and the cutest little girl.Keep being amazing, Raphtalia!

Faith’s family lovingly calls her ‘the little mustard seed that has moved mountains in so many hearts—especially ours!’ Every day, she shows more of who she is and what she’s capable of. Born at just 3 lbs 9 oz, Faith is now almost 8 lbs and making incredible progress with her breathing. She even enjoys…