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Betty’s Light: A Father’s Story: Part 1

  • Post author:Kelly Peterson
  • Post published:November 19, 2025
  • Post category:Uncategorized

New DadPod Episode Released today - in Part 1, Angel dad Brandon tells Betty's story, walking us through pregnancy and the moments leading up to her birth. A beautiful beginning…

Continue ReadingBetty’s Light: A Father’s Story: Part 1

Every Voice Matters: Speech, AAC, and the many ways our children connect

  • Post author:Kelly Peterson
  • Post published:October 29, 2025
  • Post category:Uncategorized

Every Voice Matters In this episode, we're joined by Speech-Language Pathologist Kaitlyn Shepherd, owner of bAAC Talk Speech Therapy, to dive into the beautiful world or communication. We explore how…

Continue ReadingEvery Voice Matters: Speech, AAC, and the many ways our children connect

MomPod: Therapy Talk Part 2

  • Post author:Kelly Peterson
  • Post published:October 15, 2025
  • Post category:Uncategorized

Join the moms as they share real conversations about therapy- where small steps turn into big wins for our kids with Edwards Syndrome.

Continue ReadingMomPod: Therapy Talk Part 2

Breaking Barriers: Verity’s Legacy Through Beverly’s Eyes

  • Post author:Kelly Peterson
  • Post published:October 1, 2025
  • Post category:Uncategorized

In this Breaking Barriers episode, Beverly- mama to Warrior Verity and 8 other kids-shares how her daughter's legacy continues to shine through her journey as a mother and founder of…

Continue ReadingBreaking Barriers: Verity’s Legacy Through Beverly’s Eyes

MomPod: Therapy Talk PT 1: Small Steps, Big Wins

  • Post author:Kelly Peterson
  • Post published:September 24, 2025
  • Post category:Uncategorized

Join the moms as they share real conversations about therapy- where small steps turn into big wins for our kids with Edwards Syndrome.

Continue ReadingMomPod: Therapy Talk PT 1: Small Steps, Big Wins

Dadpod: Feeding Journeys- In The NICU and Beyond

  • Post author:Kelly Peterson
  • Post published:September 17, 2025
  • Post category:Uncategorized

In this episode of the Breaking Barriers Dadpod, four dads open up about their daughters' feeding journeys with Edwards Syndrome. From the earliest days in the NICU to navigation NG…

Continue ReadingDadpod: Feeding Journeys- In The NICU and Beyond

Vinny’s Journey: A Mother’s Love Beyond Barriers

  • Post author:Kelly Peterson
  • Post published:September 3, 2025
  • Post category:Uncategorized

In this heartfelt episode, Angel Mom Robin opens up about her son Vinny's beautiful journey. Through love, loss, and resilience, Robin shares how Vinny's life continues to inspire and break…

Continue ReadingVinny’s Journey: A Mother’s Love Beyond Barriers

Breaking Barriers: Emma’s Journey: Living with Edwards Syndrome, Told by Her Mother Kelly

  • Post author:Kelly Peterson
  • Post published:August 20, 2025
  • Post category:Uncategorized

Breaking Barriers: Kelly shares her daughter Emma's inspiring journey with Edwards Syndrome. A story of Love + Strength you won't want to miss!!! 

Continue ReadingBreaking Barriers: Emma’s Journey: Living with Edwards Syndrome, Told by Her Mother Kelly

Breaking Barriers: Living with loss and Loving through Grief

  • Post author:Kelly Peterson
  • Post published:August 6, 2025
  • Post category:Uncategorized

In this heartfelt episode Jennifer shares the story of her beloved son Matthew, his life, and the love that lives on beyond his passing. Through her words, we hear a…

Continue ReadingBreaking Barriers: Living with loss and Loving through Grief

Breaking Barriers: Mia’s Story of Strength, Love and Edwards Syndrome

  • Post author:Kelly Peterson
  • Post published:July 30, 2025
  • Post category:Uncategorized

In this powerful episode of Breaking Barriers, Jeanna shares the incredible journey of her daughter Mia, who was born with Edwards Syndrome (Trisomy 18). Told through the eyes of a…

Continue ReadingBreaking Barriers: Mia’s Story of Strength, Love and Edwards Syndrome

🎙️Breathing Easier: Understanding Tracheostomy and Airway Malacia with Dr. Iverson

  • Post author:Kelly Peterson
  • Post published:July 9, 2025
  • Post category:Uncategorized

In this episode of Breaking Barriers, we welcome back Dr. Iverson, pediatric ENT specialist at the University of Kentucky Children’s Hospital, for an in-depth conversation on tracheostomy and airway malacia.…

Continue Reading🎙️Breathing Easier: Understanding Tracheostomy and Airway Malacia with Dr. Iverson

Feeding with Purpose: Navigating Tubes, Blends & Growth with Betsy Hjelmgren

  • Post author:Kelly Peterson
  • Post published:June 25, 2025
  • Post category:Uncategorized

In this empowering episode, we sit down with pediatric nutritionist Betsy Hjelmgren to talk all things feeding, nutrition, and growth in children with Edwards Syndrome and complex medical needs. From…

Continue ReadingFeeding with Purpose: Navigating Tubes, Blends & Growth with Betsy Hjelmgren

Breaking Barriers: Dad Edition

  • Post author:Kelly Peterson
  • Post published:June 18, 2025
  • Post category:Uncategorized

Breaking Barriers: Dad Edition- Hosted by Robert Polacek In this special Father’s Day episode, host Robert Polacek—proud dad of Mia—leads an honest and powerful conversation with two fellow fathers of…

Continue ReadingBreaking Barriers: Dad Edition

Through A Mothers Eyes- Surviving Childhood Cancer

  • Post author:Kelly Peterson
  • Post published:June 11, 2025
  • Post category:Uncategorized

In this powerful and heartfelt episode, we sit down with Brandi, a courageous mother sharing her journey through one of the most challenging battles a parent can face—her daughter Faith’s…

Continue ReadingThrough A Mothers Eyes- Surviving Childhood Cancer

Inside the Mind with Dr. Raskin

  • Post author:Kelly Peterson
  • Post published:May 21, 2025
  • Post category:Uncategorized

In this thoughtful and informative episode, we sit down with Dr. Raskin, a Pediatric Neurosurgeon, to talk about some of the conditions that affect children and families the most. Dr.…

Continue ReadingInside the Mind with Dr. Raskin

Mother’s Day Episode-Voices of Hope and Honor!

  • Post author:Kelly Peterson
  • Post published:May 7, 2025
  • Post category:Uncategorized

In this special Mother's Day episode, we honor the incredible strength, love and resilience of mothers raising- or who have raised-children with Edwards Syndrome (Trisomy 18). Join us as we…

Continue ReadingMother’s Day Episode-Voices of Hope and Honor!

Mother’s Day Episode-Voices of Hope and Honor!

  • Post author:Kelly Peterson
  • Post published:May 7, 2025
  • Post category:Uncategorized

In this special Mother's Day episode, we honor the incredible strength, love and resilience of mothers raising- or who have raised-children with Edwards Syndrome (Trisomy 18). Join us as we…

Continue ReadingMother’s Day Episode-Voices of Hope and Honor!
Read more about the article Marvin (Full)

Marvin (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of our brave son, Marvin. Diagnosed with Full Trisomy 18 at 20 weeks, we knew our precious boy faced incredible challenges. Marvin entered the world via emergency…

Continue ReadingMarvin (Full)
Read more about the article Rayah (Full)

Rayah (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of our precious Rayah—our princess warrior. She brought pure joy into our lives with her radiant smile and infectious personality, capturing the hearts of everyone she met.…

Continue ReadingRayah (Full)
Read more about the article Lilliana (Full)

Lilliana (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of our beautiful Lilli. From the moment of her diagnosis at 14 weeks, there was never a question—we would fight for our girl, just as we had…

Continue ReadingLilliana (Full)
Read more about the article Winter Rain (Full)

Winter Rain (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of my perfect little angel, Winter. Though she never got to experience life on this earth, Winter profoundly touched my heart. Diagnosed with full Trisomy 18 and…

Continue ReadingWinter Rain (Full)
Read more about the article Lottie (Full)

Lottie (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of our beautiful little princess, Lottie. From the moment she entered our lives, she captivated us with her tiny grace and beauty. Although we knew there were…

Continue ReadingLottie (Full)
Read more about the article Zion (Full)

Zion (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of our precious Zion, who filled our lives with pure love and sunshine for 1,259 beautiful days. Zion's radiant smile and bright blue eyes captivated everyone who…

Continue ReadingZion (Full)
Read more about the article Arya (Full)

Arya (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

In loving memory of our beautiful, strong-willed little girl, Arya. Throughout our journey, we were told Arya wouldn’t make it to birth, but from the very start, she defied every…

Continue ReadingArya (Full)
Read more about the article Daila (Full)

Daila (Full)

  • Post author:Kelly Peterson
  • Post published:March 24, 2025
  • Post category:Precious Angel

Daila was our miracle baby. We never knew she would arrive with any condition until the very moment she was born. At birth, doctors discovered she had three significant heart…

Continue ReadingDaila (Full)
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The Edwards Syndrome Association

6615 Grand Avenue #304

Gurnee, IL 60031

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Edwards Syndrome Association

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