Meet Raphtalia. She is four months old and weighs 10.5 pounds. She will start using the regular nasal canula soon! Such a big milestone. Raphtalia was a dalmatian and Minnie Mouse for Halloween. She is a rockstar and the cutest little girl.Keep being amazing, Raphtalia!
Meet Precious, Rynnie. She was born on April 13, 2022, and has Full Trisomy 18 aka Edwards Syndrome.In the words of her mom, “She’s my miracle. She’s a picture of innocent joy. I love her and want the world to see that it’s both Hard AND beautiful being a mommy to my Edwards syndrome Miracle.”Rynnie…
Adelyn’s Inspirational Story We were told our daughter might never take her first breath—but Adelyn arrived, defying all odds, in December 2019. Born with Tetralogy of Fallot, a complex heart defect, she immediately began her journey of overcoming challenges. Initially relying on an NG tube after a failed swallow study, we took her home under…
“Bayleigh has defied all the odds placed before her and continues to amaze us each day! She is thriving, learning, and growing stronger, showing the world just how resilient she truly is. As only the fourth documented case of partial and mosaic Trisomy 18, Bayleigh is living proof that hope is real. She inspires me…
“Maeve recently celebrated her 1st birthday—a milestone that fills us with immense pride and joy! Now approaching 15 months, she loves waving ‘Hi’ to everyone she sees, especially when they wave back. She’s getting stronger each day, sitting up independently for longer periods, and mastering her head control (as long as she’s not too sleepy,…
“Never lose hope, no matter how tough things get—these babies truly are little miracles! Our precious girl is proof of strength and courage. She’s our little warrior, and every day with her is a beautiful blessing.”
Ivy’s Miracle Story When Ivy was diagnosed with full Trisomy 18, doctors prepared us for the possibility that she might only have days to live. Today, against all odds, Ivy is over 100 days old and growing stronger every day! Throughout her journey—spending more than 100 days in hospitals, undergoing numerous tests and procedures, and…
Meet Maria Alice! This adorable little girl is one and a half years old and has Mosaic Edwards Syndrome, meaning that 74% of her cells contain an extra 18th chromosome. Maria Alice and her family live in Brazil, where they have received tremendous support from their community. Her family shares proudly, “She used a G-tube…
Meet sweet Paislee Grace. Paislee has Mosaic Trisomy 18 and is a beautiful rockstar.Her family says, “Paislee is showing the world how well she is thriving. She has so much love and joy to share with the world.”These warriors have SO much love and joy to share. They make the world a better place. Keep breaking…
Alejandro Thriving Story Do you remember Alejandro, our very first Thriving Thursday Warrior? His proud mama submitted his story again because he’s just that incredible! Alejandro was born on November 3, 2020, and continues to amaze us all. We’re honored to celebrate and feature his inspiring journey for the second time. We can’t wait to…
Gemma Miracle Story At 13 weeks pregnant, I received the diagnosis that my baby girl, Gemma, had Trisomy 18. From that moment on, it felt like every doctor’s appointment brought more heartbreaking news. I was repeatedly told that she wouldn’t be breathing at birth—but Gemma proved them wrong. Despite being told by some that my…
Meet Faith – Thriving at 3 Years Old! Faith W. is now 3 years old and proving the odds wrong every single day! Born with Full Trisomy 18, doctors said she likely wouldn’t survive the pregnancy and encouraged abortion throughout. After birth, she faced heart issues that required repair and was on over 13 medications….
Meet Navy – Thriving at Almost 8 Months Old! Navy is almost 8 months old and full of energy — she’s definitely found her voice! She has already undergone a VSD closure and a diaphragm plication and is scheduled for a G-tube surgery in mid-January. This little warrior has come so far — from starting…
Meet Harper – Thriving at 6 Years Old! Harper is 6 years old and living with Full Trisomy 18. She was born on February 15, 2018, and has been thriving since her open-heart surgery at 10 months old. Her family hopes to share her story to inspire other families and help educate medical professionals. Keep…
Meet Joey – Thriving at 4 Years Old! Joey is an incredible 4-year-old with Full Trisomy 18 — and he absolutely loves to swim! He thrives in the water, and it’s clear that the pool is his happy place. Just look at him living his best life! Keep breaking barriers and making waves, Joey —…
Meet Benjamin – Spreading Light and Love at 7 Years Old! Benjamin is 7 years old and shining bright with Mosaic Edwards Syndrome. His mother shares, “Benjamin is full of God’s pure light and love. His infectious smile chases away all darkness. He is completely unaware of himself and makes you feel like you are…
Meet Amelia – Thriving at 3.5 Years Old! Amelia is 3.5 years old and showing the world what it means to thrive with Full Edwards Syndrome (Trisomy 18)! Her family shares, “Amelia is almost 4 years old and thriving with Trisomy 18. She has an unrepaired VSD and pulmonary hypertension, but she doesn’t let that…
Meet Lillian – A True Edwards’ Syndrome Warrior! Lillian is 2 years old and a shining example of strength and resilience with Full Edwards’ Syndrome! Her family shares, “Lillian is the sweetest little girl and brings so much joy to our lives! She continues to amaze us and prove all the doctors wrong! Her smile…
Addie’s Big Step Forward at 16 Months Patricia, lovingly called Addie by her family, is 16 months old and full of personality! She’s often the most charming presence in the room and is making steady progress at her own pace in therapy. In this sweet moment, Addie is trying a candy cane for the first…
Maeve’s Incredible Journey at 10 Months Maeve is 10 months old and thriving with Full Edwards’ Syndrome! Her family shares, “Maeve has grown so much! She got her G-tube placed, found her beautiful smile, can almost sit up unassisted, and loves playing with her toys. We continue to work with PT and OT to help…
Meet Maria Elena: Defying Odds and Spreading Joy Maria Elena is a vibrant 6-year-old living with Full Trisomy 18, and she’s proving every day that she is unstoppable. Doctors didn’t expect her to survive birth, and if she did, they predicted she would only live a year without awareness of the world around her. But…
Meet Josiah: A 9-Year-Old Full of Joy and Determination Josiah is a sweet, joyful 9-year-old who radiates happiness and is thriving every step of the way! His bright smile and vibrant spirit are proof that life is full of possibilities. Every day, Josiah shows the world that with a positive attitude and a little determination,…
Meet Rylee: Breaking Barriers and Achieving Big Dreams Rylee is an 18-year-old powerhouse living with Partial Mosaic Trisomy 18 (Edwards’ Syndrome), and she’s a true inspiration in every sense of the word. From excelling in academics to thriving in athletics, Rylee is proof that no diagnosis can limit what’s possible with determination and passion. Her…
Eleanor Jane is a spirited 3-year-old living with Mosaic Edwards’ Syndrome—and she’s proving every day that nothing can hold her back. From the moment she was born, Eleanor has been determined to live life on her terms. The word “can’t” simply doesn’t exist in her world—she’s always eager to try new things and embrace every…
Meet Miley, a joyful four-year-old who is rewriting the narrative of what it means to live with Full Edwards Syndrome (Trisomy 18). Miley joined our family through adoption when she was just 2.5 years old, and from that moment on, she has filled our lives with light, laughter, and resilience. Due to her complex medical…
