Meet Natalia! This incredible fighter has been doing amazing lately! She’s now off the vent almost all day, except while sleeping, and has been working hard in physical therapy. Natalia can even sit up on her own for a few minutes! Her family shares, ‘This is the best she’s ever been, and we’ll keep fighting…
Meet Jemimia, a bright 7-year-old with Mosaic Trisomy 18! Her family shares, ‘We praise God for the gift of Jemimia’s life and celebrate all that she has accomplished! She first graduated from hospice, and now she has graduated from Kindergarten! Jemimia is truly a miracle to our family and a joy to everyone who meets…
Meet Landry! This little warrior has been beating the odds since birth. His family shares, ‘Landry had an 11-day NICU stay and was diagnosed with Full Trisomy 18 at just 5 days old. Remarkably, he hasn’t needed any surgeries so far. He’s currently in the 6th percentile on the typical growth chart and loves to…
Meet Aurelia Soleil, a radiant almost-2-year-old with Partial Trisomy 18! Her family shares, ‘Aurelia Soleil is our beautiful, sassy ray of sunshine! After spending her first 10 weeks in the CICU/NICU, she finally came home. Her first year was challenging, with frequent hospital stays for respiratory distress, and we almost lost her to Enterovirus last…
Meet Lia, a 14-month-old warrior with Full Trisomy 18! Her family shares, ‘Lia has made incredible progress in therapy, working hard on her vision and tracking skills. She smiles often and responds to a variety of sounds. She enjoys playing color games on the iPad, listening to music, going on walks, and spending time with…
Meet Alistair! This incredible 7-year-old with Partial Trisomy 18 is a true warrior. His family shares, ‘Alistair always gives his best effort and never stops trying—he’s a rockstar!’ Some of his favorite things include spending time with family and friends, watching movies, listening to music, and enjoying the outdoors whenever the weather allows. Despite facing…
Ember is 6 years old and has Mosaic Trisomy 18. In the words of her parents, “Ember went indoor skydiving for her 6th Birthday. The sky’s the limit for our girl! She loves to drive the boat with the grandpa too! We love watching sweet Ember thrive and do amazing things!
Meet Gunnar, a remarkable young boy from the hills of Appalachia in Southeastern Kentucky, living with Full Trisomy 18 and Klinefelter’s Syndrome. Born on December 1, 2015, at just 34 weeks and weighing 2 lbs 8 oz, Gunnar spent several weeks in the NICU at the University of Kentucky hospital. Known as ‘Gunnar the Runner,’…
Meet Faith! This remarkable 4-year-old with Mosaic Trisomy 18 has defied the odds time and time again. Her mama shares, ‘Throughout my pregnancy and even after her birth, many medical professionals had little faith in our girl, constantly reminding me of the statistics. They said she wouldn’t make it off the ventilator—she did. She wouldn’t…
Meet Maeve! This little fighter with full Trisomy 18 has already overcome so much. Her family shares, ‘We are so proud of Maeve! She underwent heart surgery at just 2 weeks old and spent 36 days in the NICU. Now, she’s happily at home, growing stronger every day! She’s doing amazing with tummy time and…
FIona is two and a half years old and has Mosaic Trisomy 18. Fiona walks, talks, eats by mouth, breastfeeds, and thrives beyond her parents’ wildest dreams! Fiona was born at 4 lbs 9 oz and is now almost 22 lbs! She moves at her own pace and is taking the world by storm. Check…
Meet Maebry! This amazing 4-year-old with Partial Trisomy 18 has been making incredible progress in so many areas of her life. Her family shares, ‘Maebry has shown great improvement in her vision, eating, and use of her arms. Her biggest achievement this year has been gaining head control, which has even helped her stand! We…
Meet Gia! This joyful little girl from Peru has Partial Trisomy 18 and will turn 7 this November! Her family shares, ‘Gia has been in physical, sensory, and orofacial therapy since she was 6 months old. Doctors said she wouldn’t live beyond her first year and declared her incompatible with life—but Gia is here to…
Paislee Grace is a vibrant one-year-old with Mosaic Trisomy 18! Her family proudly shares, ‘Paislee Grace is here to show the world she is not only compatible with life but thriving beautifully. She has overcome many challenges and continues to prove she’s a true warrior. We’re cheering you on every step of the way, Paislee!
Meet Felicity, a brave 7-year-old with full Trisomy 18! Her family describes her as a sweet little warrior princess who has overcome incredible challenges. Felicity’s journey has taken her from relying on a wheelchair with full-body supports, being 100% tube-fed, and needing oxygen and constant monitoring, to now running, playing, and eating completely by mouth….
Faith’s family lovingly calls her ‘the little mustard seed that has moved mountains in so many hearts—especially ours!’ Every day, she shows more of who she is and what she’s capable of. Born at just 3 lbs 9 oz, Faith is now almost 8 lbs and making incredible progress with her breathing. She even enjoys…
Meet Ella, a joyful 3-year-old with full Trisomy 18! Her family says, ‘Ella is beyond belief. Despite her T18 diagnosis, the only ongoing treatment she needs is tube feeding for slow growth—medically, she’s perfect! She’s crushing milestones we were told she’d never reach and is the happiest little girl we know!
Meet Charlotte, a sweet yet sassy 5-year-old warrior with full Trisomy 18. Her journey began on hospice care at home, with no interventions, but after a month, hospital stays and additional support became essential to help her thrive. With the care of home nursing, early intervention, specialists, and helpful tools, Charlotte achieved a major milestone—graduating…
Emma Grace just celebrated her 5th birthday! Born with Mosaic Trisomy 18, her parents were told she wouldn’t live past six months. Now at 5, she’s thriving—riding horses, swimming, and enjoying new learning experiences. In June, Emma completed her first therapy intensive with PT, OT, and Speech, and since then, she’s made amazing progress. She…
Meet Mila, the miracle! This 6-year-old with Mosaic Trisomy 18 defied all odds. Her mom recalls, ‘We were told she wouldn’t make it to birth—let alone 6 years!’ But here she is, thriving and stronger than ever. Mila is truly a little warrior princess, showing the world her strength every day!
Look at Mia using her eye gaze device! The moment she heard her daddy walk through the door, she lit up—just like any other kid—eager to greet him and ask how his day was. It’s incredible what children with Edwards Syndrome can achieve when given the right tools! Mia turns 4 on Monday, and the…
Olivia is a beautiful, thriving 2 year old with Trisomy 18! “She has overcame so much in those two years. When we were pregnant the first doctor told us that she would never make it. Here she is, two and thriving. She’s a joy to be around and just such a sweet girl.” – Olivia’s…
Sajjona’s mom recalls, ‘We were told she wouldn’t live more than two weeks, and abortion was recommended due to no hope.’ But here we are—five years and eight months later! Sajjona speaks, laughs, cries, and smiles—things they said she’d never do. She lives a vibrant life, attending Sunday School, 4H Club, and Homeschool Club, surrounded…
Brooklyn, a vibrant 2-year-old with Full Trisomy 18, is thriving! In this photo, she proudly sits independently in a grocery cart, showing off her hard work in reaching new milestones. She’s proving she’s more than capable of enjoying everyday adventures like grocery shopping!
Javier has full Trisomy 18 and is 2 years old. He is thriving in his gait trainer! He is compatible with standing and walking! He works very hard with his therapist to hit those milestones!
