Breaking Barriers: Dad Edition

Every Voice Matters In this episode, we’re joined by Speech-Language Pathologist Kaitlyn Shepherd, owner of bAAC Talk Speech Therapy, to dive into the beautiful world or communication. We explore how every child-whether through speech, sounds, gestures, or AAC devices-has a voice worth hearing. Kaitlyn shares insight on supporting communication and feeding skills for children with…

In this thoughtful and informative episode, we sit down with Dr. Raskin, a Pediatric Neurosurgeon, to talk about some of the conditions that affect children and families the most. Dr. Raskin helps us understand epilepsy and when surgery can be a life-changing option, movement disorders-especially in the context of rare conditions like Edwards Syndrome-and hydrocephalus,…

In this heartfelt episode, Angel Mom Robin opens up about her son Vinny’s beautiful journey. Through love, loss, and resilience, Robin shares how Vinny’s life continues to inspire and break barriers.

In this heartfelt episode Jennifer shares the story of her beloved son Matthew, his life, and the love that lives on beyond his passing. Through her words, we hear a powerful journey of motherhood, loss, and the enduring strength it takes to carry grief with grace and purpose. 

In this empowering episode, we sit down with pediatric nutritionist Betsy Hjelmgren to talk all things feeding, nutrition, and growth in children with Edwards Syndrome and complex medical needs. From NG and G-tube support to weaning strategies and blending real food for tube feeds, Betsy brings compassionate, evidence-based guidance for families navigating these unique journeys….

In this episode of Breaking Barriers, we welcome back Dr. Iverson, pediatric ENT specialist at the University of Kentucky Children’s Hospital, for an in-depth conversation on tracheostomy and airway malacia. Dr. Iverson explains what these conditions mean, how they’re diagnosed, and what families can expect when navigating trach care. Whether your child has a tracheostomy…