Breaking Barriers: Emma’s Journey: Living with Edwards Syndrome, Told by Her Mother Kelly
Breaking Barriers: Kelly shares her daughter Emma’s inspiring journey with Edwards Syndrome. A story of Love + Strength you won’t want to miss!!!
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Mother’s Day Episode-Voices of Hope and Honor!
In this special Mother’s Day episode, we honor the incredible strength, love and resilience of mothers raising- or who have raised-children with Edwards Syndrome (Trisomy 18). Join us as we sit down with a group of brave and compassionate moms who share their deeply personal journeys: the challenges, the beauty in the small moments, the…
Dadpod: Feeding Journeys- In The NICU and Beyond
In this episode of the Breaking Barriers Dadpod, four dads open up about their daughters’ feeding journeys with Edwards Syndrome. From the earliest days in the NICU to navigation NG tubes, G-Tubes, GJ tubes-and even the challenges or triumphs of eating by mouth-these fathers share their real and raw experiences. It’s an honest, heartfelt conversation…
Every Voice Matters: Speech, AAC, and the many ways our children connect
Every Voice Matters In this episode, we’re joined by Speech-Language Pathologist Kaitlyn Shepherd, owner of bAAC Talk Speech Therapy, to dive into the beautiful world or communication. We explore how every child-whether through speech, sounds, gestures, or AAC devices-has a voice worth hearing. Kaitlyn shares insight on supporting communication and feeding skills for children with…
Breaking Barriers: Living with loss and Loving through Grief
In this heartfelt episode Jennifer shares the story of her beloved son Matthew, his life, and the love that lives on beyond his passing. Through her words, we hear a powerful journey of motherhood, loss, and the enduring strength it takes to carry grief with grace and purpose.
Inside the Mind with Dr. Raskin
In this thoughtful and informative episode, we sit down with Dr. Raskin, a Pediatric Neurosurgeon, to talk about some of the conditions that affect children and families the most. Dr. Raskin helps us understand epilepsy and when surgery can be a life-changing option, movement disorders-especially in the context of rare conditions like Edwards Syndrome-and hydrocephalus,…
🎙️Breathing Easier: Understanding Tracheostomy and Airway Malacia with Dr. Iverson
In this episode of Breaking Barriers, we welcome back Dr. Iverson, pediatric ENT specialist at the University of Kentucky Children’s Hospital, for an in-depth conversation on tracheostomy and airway malacia. Dr. Iverson explains what these conditions mean, how they’re diagnosed, and what families can expect when navigating trach care. Whether your child has a tracheostomy…
