Davi Lucas (Full) 9 Years Old

Meet Navy – Thriving at Almost 8 Months Old! Navy is almost 8 months old and full of energy — she’s definitely found her voice! She has already undergone a VSD closure and a diaphragm plication and is scheduled for a G-tube surgery in mid-January. This little warrior has come so far — from starting…

Look at Mia using her eye gaze device! The moment she heard her daddy walk through the door, she lit up—just like any other kid—eager to greet him and ask how his day was. It’s incredible what children with Edwards Syndrome can achieve when given the right tools! Mia turns 4 on Monday, and the…

Meet Harper – Thriving at 6 Years Old! Harper is 6 years old and living with Full Trisomy 18. She was born on February 15, 2018, and has been thriving since her open-heart surgery at 10 months old. Her family hopes to share her story to inspire other families and help educate medical professionals. Keep…

Meet Lia, a 14-month-old warrior with Full Trisomy 18! Her family shares, ‘Lia has made incredible progress in therapy, working hard on her vision and tracking skills. She smiles often and responds to a variety of sounds. She enjoys playing color games on the iPad, listening to music, going on walks, and spending time with…

Gemma Miracle Story At 13 weeks pregnant, I received the diagnosis that my baby girl, Gemma, had Trisomy 18. From that moment on, it felt like every doctor’s appointment brought more heartbreaking news. I was repeatedly told that she wouldn’t be breathing at birth—but Gemma proved them wrong. Despite being told by some that my…

Javier has full Trisomy 18 and is 2 years old. He is thriving in his gait trainer! He is compatible with standing and walking! He works very hard with his therapist to hit those milestones!