Meet Gunnar, a remarkable young boy from the hills of Appalachia in Southeastern Kentucky, living with Full Trisomy 18 and Klinefelter’s Syndrome. Born on December 1, 2015, at just 34 weeks and weighing 2 lbs 8 oz, Gunnar spent several weeks in the NICU at the University of Kentucky hospital. Known as ‘Gunnar the Runner,’…
Meet Maeve! This little fighter with full Trisomy 18 has already overcome so much. Her family shares, ‘We are so proud of Maeve! She underwent heart surgery at just 2 weeks old and spent 36 days in the NICU. Now, she’s happily at home, growing stronger every day! She’s doing amazing with tummy time and…
Meet Felicity, a brave 7-year-old with full Trisomy 18! Her family describes her as a sweet little warrior princess who has overcome incredible challenges. Felicity’s journey has taken her from relying on a wheelchair with full-body supports, being 100% tube-fed, and needing oxygen and constant monitoring, to now running, playing, and eating completely by mouth….
Faith’s family lovingly calls her ‘the little mustard seed that has moved mountains in so many hearts—especially ours!’ Every day, she shows more of who she is and what she’s capable of. Born at just 3 lbs 9 oz, Faith is now almost 8 lbs and making incredible progress with her breathing. She even enjoys…
Meet Ella, a joyful 3-year-old with full Trisomy 18! Her family says, ‘Ella is beyond belief. Despite her T18 diagnosis, the only ongoing treatment she needs is tube feeding for slow growth—medically, she’s perfect! She’s crushing milestones we were told she’d never reach and is the happiest little girl we know!
Meet Charlotte, a sweet yet sassy 5-year-old warrior with full Trisomy 18. Her journey began on hospice care at home, with no interventions, but after a month, hospital stays and additional support became essential to help her thrive. With the care of home nursing, early intervention, specialists, and helpful tools, Charlotte achieved a major milestone—graduating…
Look at Mia using her eye gaze device! The moment she heard her daddy walk through the door, she lit up—just like any other kid—eager to greet him and ask how his day was. It’s incredible what children with Edwards Syndrome can achieve when given the right tools! Mia turns 4 on Monday, and the…
Olivia is a beautiful, thriving 2 year old with Trisomy 18! “She has overcame so much in those two years. When we were pregnant the first doctor told us that she would never make it. Here she is, two and thriving. She’s a joy to be around and just such a sweet girl.” – Olivia’s…
Sajjona’s mom recalls, ‘We were told she wouldn’t live more than two weeks, and abortion was recommended due to no hope.’ But here we are—five years and eight months later! Sajjona speaks, laughs, cries, and smiles—things they said she’d never do. She lives a vibrant life, attending Sunday School, 4H Club, and Homeschool Club, surrounded…
Brooklyn, a vibrant 2-year-old with Full Trisomy 18, is thriving! In this photo, she proudly sits independently in a grocery cart, showing off her hard work in reaching new milestones. She’s proving she’s more than capable of enjoying everyday adventures like grocery shopping!
Javier has full Trisomy 18 and is 2 years old. He is thriving in his gait trainer! He is compatible with standing and walking! He works very hard with his therapist to hit those milestones!
