Family Directory Questionaire

Diagnosed Child's First Name:

Parents First Names:

Siblings Names:

Child's Date of Birth:

Child's Date of Passing:

Location (State or Country if other than the USA)

Child's Trisomy Diagnosis:

Your Child's Public Social Media Pages/Groups/Links:

Are there any other diagnosis you would like listed on your child's profile?

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I give permission to the Edwards Syndrome Association (ESA) to share our family’s information on the ESA website, social media, other online platforms, or in promotional materials. I understand that the information provided was shared voluntarily, and I grant permission for ESA representatives to contact me if additional details are needed. I also consent to the ESA using this information both now and in the future, as needed.

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Family Directory Questionaire

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