About Us
Who We Are
The Edwards Syndrome Association (ESA) originated from a dedicated group of friends driven by a shared commitment to create positive change for our children and others facing similar diagnoses. While each of us independently aspired to establish a nonprofit organization, it was our collective vision and collaboration that transformed these aspirations into reality.
Our unified objective is to foster an environment characterized by “No Limitations,” highlighting boundless advocacy, comprehensive support, and the inherent potential and worth of children diagnosed with Edwards’ Syndrome. Our mission emphasizes the infinite possibilities achievable through dedicated love, specialized medical care, targeted therapies, effective support systems, and tailored educational resources. We firmly believe that with the appropriate tools and interventions, these children, like any others, will thrive in uniquely meaningful ways.
Thus, ESA was established with a commitment to supporting individuals of all ages diagnosed with Edwards’ Syndrome. We aim to address and positively impact the daunting statistic often presented to parents—that their child has less than a 10% chance of celebrating their first birthday. Our vision is to significantly improve this outlook by providing sustained, comprehensive support for families and their resilient children who surpass this milestone.
Our organization is dedicated to guiding parents toward essential answers: How can they access equitable medical care? What specialized equipment and therapies are necessary? What educational and developmental resources are available? By integrating these vital components into a robust, accessible network, ESA strives to illuminate the true potential of individuals living with Edwards’ Syndrome. Ultimately, we advocate for a medical community that fully recognizes and supports the exceptional lives that Edwards’ Syndrome warriors can lead when provided with the care and opportunities afforded to any other child.
Jeanna Polacek, originally from Illinois, co-founded the Edwards’ Syndrome Association after her daughter Mia was diagnosed with the condition. With degrees in Criminal Justice and Paralegal studies, she previously worked in immigration law. Jeanna lives near Chicago and enjoys exploring new places, camping, and hockey. She aims to instill hope in families with children diagnosed with Edwards’ Syndrome.
Kelly Peterson, a Maryland native, advocates for Edwards’ Syndrome due to her personal experience with her daughter Emma, who has Mosaic Edwards’ Syndrome. With a background in disability, education, and the medical field, Kelly uses her experience to help other families. She holds a degree in Early Childhood Education and various medical certifications.
Robert Polacek shares the same goals for the Edwards’ Syndrome Association as his wife, Jeanna. Their first daughter was diagnosed with Edwards’ Syndrome, inspiring them to help other families navigate the healthcare system. Robert, a Senior Project Accountant with a BA in Accounting from the University of St. Thomas, enjoys family time, sports, and golf. He aims to positively impact society’s view of Edwards’ Syndrome and advocate for the well-being of children with the condition.
Brandon Huxhold, Client Executive at Insight and Social Media Manager for the ESA, uses social media to raise awareness about Edwards’ Syndrome, inspired by his daughter Fiona. A graduate of St. Mary’s University of Minnesota, Brandon enjoys golf and creating TikTok content. He offers resources and support to families affected by Edwards’ Syndrome.
Crystal Simpson, Advocacy Manager for the Edwards’ Syndrome Association, has a background in caregiving and is inspired by her son Gunnar, who has Edwards’ Syndrome. Formerly a CNA, Crystal enjoys outdoor adventures with her family in Kentucky. She provides sensory coaching for parents and aims to fill the resource gap for Edwards’ Syndrome beyond the initial post-birth period.
Kids Behind the ESA
