About Us
Who We Are
The Edwards Syndrome Association (ESA) team began as a group of friends united by a desire to make a difference for our children and others with similar diagnoses. Each of us had envisioned starting a non-profit, but it wasn’t until we came together that our ideas took shape.
Our common goal was to create an environment with “No Limitations.” We wanted to establish an organization that showcases boundless advocacy, support, potential, and worth for children with Edwards’ Syndrome. Our mission is to emphasize the infinite possibilities that arise with the right love, medical care, support, therapy, and education. Like anyone else, these children will thrive in their unique ways when given the appropriate tools.
Thus, The ESA was born. We aim to support individuals of all ages, addressing the stark reality that many new parents are told their child has less than a 10% chance of reaching their first birthday. Our vision is to improve this statistic and offer ongoing support to families and warriors who surpass this milestone.
We sought to answer crucial questions for parents: How can they find fair care? What equipment and therapies does their child need? What resources and educational options are available? By integrating these resources into comprehensive networks, we strive to present the true spectrum of Edwards’ Syndrome. We want medical professionals to recognize the amazing life that can be achieved when an Edwards’ Syndrome warrior receives the same care as any other child.
Jeanna Polacek, originally from Illinois, co-founded the Edwards’ Syndrome Association after her daughter Mia was diagnosed with the condition. With degrees in Criminal Justice and Paralegal studies, she previously worked in immigration law. Jeanna lives near Chicago and enjoys exploring new places, camping, and hockey. She aims to instill hope in families with children diagnosed with Edwards’ Syndrome.
Kelly Peterson, a Maryland native, advocates for Edwards’ Syndrome due to her personal experience with her daughter Emma, who has Mosaic Edwards’ Syndrome. With a background in disability, education, and the medical field, Kelly uses her experience to help other families. She holds a degree in Early Childhood Education and various medical certifications.
Robert Polacek shares the same goals for the Edwards’ Syndrome Association as his wife, Jeanna. Their first daughter was diagnosed with Edwards’ Syndrome, inspiring them to help other families navigate the healthcare system. Robert, a Senior Project Accountant with a BA in Accounting from the University of St. Thomas, enjoys family time, sports, and golf. He aims to positively impact society’s view of Edwards’ Syndrome and advocate for the well-being of children with the condition.
Brandon Huxhold, Client Executive at Insight and Social Media Manager for the ESA, uses social media to raise awareness about Edwards’ Syndrome, inspired by his daughter Fiona. A graduate of St. Mary’s University of Minnesota, Brandon enjoys golf and creating TikTok content. He offers resources and support to families affected by Edwards’ Syndrome.
Crystal Simpson, Advocacy Manager for the Edwards’ Syndrome Association, has a background in caregiving and is inspired by her son Gunnar, who has Edwards’ Syndrome. Formerly a CNA, Crystal enjoys outdoor adventures with her family in Kentucky. She provides sensory coaching for parents and aims to fill the resource gap for Edwards’ Syndrome beyond the initial post-birth period.
Kids Behind the ESA
