Miley (Full) 4 years old
Meet Miley, a joyful four-year-old who is rewriting the narrative of what it means to live with Full Edwards Syndrome (Trisomy 18). Miley joined our
This is a space dedicated to celebrating the incredible journeys of children living with Trisomy 18, also known as Edwards Syndrome. Despite the challenges that come with this diagnosis, these amazing children are rewriting the narrative and showing the world that they are not just surviving—they are thriving.
Each child’s story is a testament to resilience, joy, and the power of love. Through milestones big and small, they continue to break barriers and inspire everyone around them. Whether it’s learning to sit independently, taking steps with the help of a walker, or spreading happiness with their infectious smiles, these children are making a meaningful impact on their families and communities.
Our goal is to raise awareness, share hope, and remind the world that life with Trisomy 18 is full of possibilities. Here, we honor the strength and achievements of these warriors, proving that a diagnosis does not define their potential.
Join us as we highlight their journeys—each one unique, beautiful, and filled with love. We hope their stories inspire you as much as they inspire us. Together, let’s celebrate the joy, progress, and vibrant lives of these thriving children with Trisomy 18.
Meet Miley, a joyful four-year-old who is rewriting the narrative of what it means to live with Full Edwards Syndrome (Trisomy 18). Miley joined our
Meet Natalia! This incredible fighter has been doing amazing lately! She’s now off the vent almost all day, except while sleeping, and has been working
Meet Laelynn, a 10-month-old miracle with Full Trisomy 18! Her mom shares, ‘Lae is a feisty little fighter who has beaten every odd stacked against
Meet Jemimia, a bright 7-year-old with Mosaic Trisomy 18! Her family shares, ‘We praise God for the gift of Jemimia’s life and celebrate all that
Meet Landry! This little warrior has been beating the odds since birth. His family shares, ‘Landry had an 11-day NICU stay and was diagnosed with
Meet Aurelia Soleil, a radiant almost-2-year-old with Partial Trisomy 18! Her family shares, ‘Aurelia Soleil is our beautiful, sassy ray of sunshine! After spending her
Meet Lia, a 14-month-old warrior with Full Trisomy 18! Her family shares, ‘Lia has made incredible progress in therapy, working hard on her vision and
Meet Alistair! This incredible 7-year-old with Partial Trisomy 18 is a true warrior. His family shares, ‘Alistair always gives his best effort and never stops
Ember is 6 years old and has Mosaic Trisomy 18. In the words of her parents, “Ember went indoor skydiving for her 6th Birthday. The
Meet Gunnar, a remarkable young boy from the hills of Appalachia in Southeastern Kentucky, living with Full Trisomy 18 and Klinefelter’s Syndrome. Born on December