Partnerships
To provide resources and support to families affected by Edwards Syndrome/Trisomy 18, and other rare diseases, while changing the medical perspective through advocacy, education, and public policy.
The Tracking Rare Incidence Syndromes (TRIS) project seeks to increase awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision-making for optimal services and support for children and their families.
Verity’s Village provides encouragement, education, and practical support for families who receive a life-limiting prenatal diagnosis for their baby. Our vision is to change the narrative surrounding genetic anomalies from heartache to hope!
The mission of Simon’s Law is to create national awareness and protection for medically endangered pediatric dependents with life-threatening diagnoses through education, accountability, parental rights legislation, and the Patients’ Bill of Rights.
The mission of Simon’s Kids is to seek and foster fair and equal access to life-saving medical treatment for pediatric dependents with life-threatening diagnoses by equipping and empowering parents/legal guardians, through education, advocacy, resources, and national awareness.
Asher’s Answer Inc. is a nonprofit organization devoted to supporting families of babies diagnosed with rare trisomies. Our mission is to offer financial support to trisomy families for uncovered costs associated with the medical issues these babies and children face.
