Lilliana (Full) 3 Years Old
Meet rockstar, Lilliana! -Lilliana has Full Trisomy 18 aka Edwards Syndrome and was born in September of 2021.She and her family are amazing. Look at the
This is a space dedicated to celebrating the incredible journeys of children living with Trisomy 18, also known as Edwards Syndrome. Despite the challenges that come with this diagnosis, these amazing children are rewriting the narrative and showing the world that they are not just surviving—they are thriving.
Each child’s story is a testament to resilience, joy, and the power of love. Through milestones big and small, they continue to break barriers and inspire everyone around them. Whether it’s learning to sit independently, taking steps with the help of a walker, or spreading happiness with their infectious smiles, these children are making a meaningful impact on their families and communities.
Our goal is to raise awareness, share hope, and remind the world that life with Trisomy 18 is full of possibilities. Here, we honor the strength and achievements of these warriors, proving that a diagnosis does not define their potential.
Join us as we highlight their journeys—each one unique, beautiful, and filled with love. We hope their stories inspire you as much as they inspire us. Together, let’s celebrate the joy, progress, and vibrant lives of these thriving children with Trisomy 18.
Meet rockstar, Lilliana! -Lilliana has Full Trisomy 18 aka Edwards Syndrome and was born in September of 2021.She and her family are amazing. Look at the
Meet Davi Lucas!Davi will turn 9 this year and has Full Trisomy 18 aka Edwards SyndromeHe is a warrior and an inspiration!
Meet Danny! He is 10 years old with Full Trisomy 18.His family says, “He is full of smiles, love, and snuggles. He is very perceptive
Janie Mae is almost 5 months old and has Full trisomy 18 aka Edwards Syndrome.In the words of her mama, “Janie is truly my biggest
“In 2014, Lucia proudly sang the National Anthem at a New York Rangers game, capturing hearts in the arena. Now, she’s reached another incredible milestone—graduating
Meet Wylie! Wylie is 5 and has Full Edwards Syndrome. In the words of her Mama, “Wylie is a world changer. She has changed our
Meet Raphtalia. She is four months old and weighs 10.5 pounds. She will start using the regular nasal canula soon! Such a big milestone. Raphtalia
Meet Precious, Rynnie. She was born on April 13, 2022, and has Full Trisomy 18 aka Edwards Syndrome.In the words of her mom, “She’s my
Adelyn’s Inspirational Story We were told our daughter might never take her first breath—but Adelyn arrived, defying all odds, in December 2019. Born with Tetralogy
“Bayleigh has defied all the odds placed before her and continues to amaze us each day! She is thriving, learning, and growing stronger, showing the