Davi Lucas (Full) 9 Years Old

Janie Mae is almost 5 months old and has Full trisomy 18 aka Edwards Syndrome.In the words of her mama, “Janie is truly my biggest blessing and I wouldn’t trade this journey for anything. I know it’s only been 5 months, but to me she was breaking barriers with this diagnosis before she was even…

Meet Charlotte, a sweet yet sassy 5-year-old warrior with full Trisomy 18. Her journey began on hospice care at home, with no interventions, but after a month, hospital stays and additional support became essential to help her thrive. With the care of home nursing, early intervention, specialists, and helpful tools, Charlotte achieved a major milestone—graduating…

Meet Harper – Thriving at 6 Years Old! Harper is 6 years old and living with Full Trisomy 18. She was born on February 15, 2018, and has been thriving since her open-heart surgery at 10 months old. Her family hopes to share her story to inspire other families and help educate medical professionals. Keep…

Maeve’s Incredible Journey at 10 Months Maeve is 10 months old and thriving with Full Edwards’ Syndrome! Her family shares, “Maeve has grown so much! She got her G-tube placed, found her beautiful smile, can almost sit up unassisted, and loves playing with her toys. We continue to work with PT and OT to help…

Addie’s Big Step Forward at 16 Months Patricia, lovingly called Addie by her family, is 16 months old and full of personality! She’s often the most charming presence in the room and is making steady progress at her own pace in therapy. In this sweet moment, Addie is trying a candy cane for the first…

Meet Ella, a joyful 3-year-old with full Trisomy 18! Her family says, ‘Ella is beyond belief. Despite her T18 diagnosis, the only ongoing treatment she needs is tube feeding for slow growth—medically, she’s perfect! She’s crushing milestones we were told she’d never reach and is the happiest little girl we know!